Your Personal Mountain

There’s been a lot of talk lately amongst some of the Parkinson’s community about climbing mountains. Recently, a group of people, which included our own Judy, climbed Mt. Washington in New Hampshire in order to raise funds and awareness in an effort to find a cure for both PD and Alzheimer’s disease. You have to view her video of her experience on how the climb went. You’ll be so very encouraged, inspired, and touched—guaranteed. (Go to Judy’s Mt Washington )

Yesterday, I received a post comment from a 29-year-old young woman, by the name of Brandi Roman, who has had PD since the age of 25. She has just recently finished climbing her own mountain in an effort to bring awareness to the PD cause. She and some others together climbed the highest mountain in her home state of Montana—12,807 feet of a mountain called Granite Peak. You can check out http://www.summit4parkinsons.com/wordpress/.

What motivates people to do stuff like this? First, you have to see beyond yourself—more than just feeling better merely for your sake—you have to want it for all mankind. Second, you have made a conscious decision to stand and fight, no matter what. You have decided that whatever disease you have, it doesn’t have you—you’re still in control and calling the shots. You’re not giving up.

Brandi’s mountain was 12,000+ tall  in Montana. Judy’s mountain was Mt. Washington in New Hampshire. We who live with a chronic disease are all climbing mountains, but they may take a different form than steep peaks and rocky terrain. Your mountain may be walking one lap of a football field for a fundraiser or forcing yourself to walk a little further today than yesterday. It may be joining a support group and getting out and meeting people or just accepting the fact that you have this disease itself.

All through life, we will come to mountain after mountain along our paths. No path is without its challenges and mountains are a part of those challenges. Piles and heaps of ‘stuff’ which we must determine to climb over  or just be content to stay where we are. We know if we climb, it will be steep and tiring. We may be gasping for air. But in the climb, somewhere deep down  inside of you takes over—something you didn’t know you had and you push yourself to keep going. You keep fighting the urge to quit until you finally reach the top. And when you  take that last step, you see why you fought so hard and pushed so long to get there. The view is breathtaking. It is incredible, leaving you speechless—unlike anything you’ve ever experienced.

That is what happens when you climb the mountains and press on until you reach the top—you stand in awe of what you have accomplished, what you never thought you could do. You see what you’re made of and so do those who are watching you.

Your largest mountain may be the disease itself. If so, take one step at a time and push on. Fight for your life, don’t give up, and don’t give in. Your mountain may be taking care of someone you love who has a chronic or terminal disease or illness. Take one moment, one day at a time and take time for you. One of your mountains may be stepping out of your fear zone and meeting some other people who are climbing the PD mountain. Do it. You won’t be climbing alone and when one of you grows weary and wants to quit, the others will help him fight his way to the top, just as Judy and Jeanette did for each other on Mt. Washington.

“…if you have faith the size of a mustard seed, you will say to this mountain, ‘Move from here to there,’ and it will move; and nothing will be impossible for you.”

Start climbing that mountain or make it move out of your way. Nothing is impossible, especially when someone is climbing with you.

A Note From Judy

A note from Judy:

I want to take this opportunity to tell all of you who follow us at Parkinson’s Journey how grateful I am and how comforting your many notes and calls of sympathy have been to me and my family in the death of my mother, Becky Good. We all have different ways of expressing our care and concern, and I thought of how this example below might be good to write in a rhyming beat.

Someone recently sent me a “care package” in the mail,

The content of which I hope they don’t mind if I tell.

It was sent from their heart without any request

I’ll just tell you the sender is ‘one-of-the-best’!

She uniquely knows the struggles we share

And tackles life with PD as anyone would a good dare.

She inspires so many others as well as me

with her words about life at Parkinson’s Journey.

It brings a smile on my face from ear to ear

When I think of the things we both hold so dear.

Things like pictures of pretty flowers,

Time spent with family and friends

And a faith that sustains us each and every hour.

Then there is the chocolate connection.

A common fav’e is the almond M&M confection

Even though we live so very far away

It seems that we have found common things along our life’s pathways.

I know I am pleased to call her friend and I say:

Thank you Sherri for the Oreos, M&M’s and the flower cards and all the other ways you have expressed your care and concern over the last few weeks and days!

oh and by the way, even though i joined Curves to lose some weight

I feel i must consume these goodies…it is just my fate!!!

lol

Judy

6/20/10

I’ll Say It Again: Here’s Why PD and Halodol / Haloperidol DON’T MIX

I am not trying to be ‘smart’, but rather, trying to get your attention.  They say a good title will do that, so I’m trying.

A few days ago, I received a note from a gentleman who had just lost his father in-law to negligence within the medical community.  I say negligence, because basically, that’s what it comes down to.  Before a person goes in for any type of surgery, it is my understanding that the medical staff involved in whatever prodedure will take place have a decent understanding regarding the patients medical history.  For example, if they have Parkinson’s disease.  Yet, not all medical personnel are up to date on certain things in terms of how a drug, for example, will affect someone with PD.

A few months ago, I wrote an article on a drug called Halodol, a.k.a. Haloperidol, and how anyone with PD should steer clear of it as it is life threatening to a PD patient.   I’d like to share this man’s story with you:

Hi everyone – My father in law lived by himself and was doing fine, alone with PD. He passed away 5/10/10 after entering the hospital 4/28/10, after he tripped going out to his car, to make the 2 hour drive to come and see me, his son in law and his daughter (my wife) and our children.

A simple 45 minute hip surgery had taken place 4/29/10.  They kept covering him with blankets and he always complained he was hot from the shaking, so he would take the blankets off, so they started giving him HALDOL.  Why, I don’t know. A day later he was in ICU for 4 days on complete life support. He somehow managed to snap back from ICU and make it back to a regular room, after we found out what Haldol was and told them to stop giving it to him. Even their pharmacist at that point said “Yeah, don’t give him Haldol.”  He still had to be on a respirator. I guess the haldol in pill form was aspirating him also. A few days later he died. They said the cause of death was advanced PD.  How does someone with advanced PD live on their own, sharp as a tack (this man launched rockets for Nasa and designed aircraft for Boeing, could drive a car fine, talked fine on the phone), but after the haldol, he became a vegetable and mumbled and didn’t know who anyone was?   At least I was there when he died I am sure glad my wife did not have to see her father dead as she was there with him through the whole thing but had went home for a few hours to rest.  His name was John and he is probably the finest, most caring, loving man I will ever have the pleasure of knowing.  He was involved in the MJF foundation, as well donating money to help others like him with PD.  Thanks for letting me share his story…

My response:

Thank you so much for sharing your story. My sincerest sympathies for the loss of your father in-law. What a tragedy. About six months ago I ran across an article re: Halodol/Haloperidol and the warning for PD patients to be alert in situations much like yours with your father in-law. Thank you for sharing your heartbreaking story so that others will understand how serious it is for PD patients to stay clear of the drug. For those who are not aware of the dangers of this drug for people with PD, you can read about it here.

Today I received this response from him:

Thank you Sherri. It was your post here that alerted me when my wife phoned from the hospital and asked me to find out what Haldol was.  She could not understand the state John was in from a simple 45 minute surgery so she inquired as to what they were giving him.

I have now been doing my homework.  This is what we experienced with John and it amazed me how he could one day be perfectly fine (minus some shaking that his meds controlled fairly well) one day to be basically out of his mind the next day. I found a blog where an RN stated “Haldol will make an insane person sane and a sane person insane” I searched ‘can PD kill you’ and found this:

“Just as there is dementia in Alzheimer’s, so there can be in Parkinson’s. This is not a pretty dementia, it is frightening to comprehend. Another problem is that in PD it is coupled with a myriad of other neuromotor problems including possible loss of intellectual capabilities. While this is not death it can be a form of living death for the patient and for the family.”

Thank you again Sherri and God Bless you and yours.

All to say, please please please…  take someone with you if you’re having a procedure done – someone who can speak for you if you’re not able to.  Make sure the medical personnel know your allergies, and any other vital information like YOU HAVE PD AND CANNOT TAKE HALODOL.  Get a medical ID bracelet with that information on it and/or carry a PD card (I have some I can mail, if you request one and send me your address).  Be proactive in your care as best you can.  Your life literally depends on it.

Thank you again, Jim, for sharing your story and I can speak for all our readers that we are saddened by your loss and pray for you and your family for the emptiness felt in the days to come.