Tag: young onset pd

You Can’t Be Serious

When talking about symptoms of Parkinson’s disease, you usually hear the basics when it comes to listing them all.  Recently I ran across a question, posed by a PD patient and answered by an online geriatric nurse that specializes in caring for people with PD.  The question?  How do I know when I’m close to ... ...

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DBS Part 2 – Getting Plugged In

  This past weekend we repeated the trek south to have my regulator programmed and my stitches removed.  I couldn’t decide which I was looking forward to more – having my stitches removed so my head would finally stop itching or having the unit turned on. We arrived in Phoenix Monday evening and made sure ... ...

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Five Words that Counteract ‘I Don’t Know’… I Don’t Want To Know

I don’t know. Often when asked, our response to the question, “What will happen to you?” in regards to having Parkinson’s disease is, I don’t know. It’s not that we don’t know, but we’re not certain that what we know, is what will be.  And, it’s not that we don’t know, but we are all different ... ...

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DBS… Been there. Done that.

How did it go?  I’ll tell you… After a 20 hour drive, we pulled in to Phoenix in time for my MRI.  We thought, since we were about an hour early we’d check in first, but as we waited for the help desk in the hotel, we glanced at the clock and realized we were ... ...

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Excerpt from Upcoming Book… Shaking On the Inside

Many of you have asked how my book is coming.  THANKS FOR YOUR SUPPORT!!!  It’s coming along great, actually.  Here is a sneak preview.  This excerpt is from Chapter 6: Fear of the Unknown… I remember meeting my son for lunch one day and as I got out of the car, my foot was dragging ... ...

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I Just Wanna Dance… Kay Jenkins

You will cry… get the Kleenex.  But – it gets better.  It gets great.  I promise. Thanks Kay, for sharing your story – for all of us… And, special thanks to Jim Harry for making this video possible. I Just Wanna Dance – Story of Parkinson”s Dise ...

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A Treat with Laura Dean

I was first introduced to this poem a couple of years ago by Judy.  The woman you are about to meet has Parkinson’s disease and the poem she is reciting is one she wrote.  Her name is Laura Dean and you will be moved.  Thanks Judy, for unearthing the video once again, and thank you ... ...

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It’s Like Something’s Wrong With Your Brain… Gee, ‘Ya Think?

This is for all those people with Parkinson’s disease who can’t seem to make others understand what’s going on in the mind of a PD patient. I’ve personally heard of people with PD who actually live with others who don’t believe they have PD.  You can call it denial. You can call it ignorance. You ... ...

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Judy Shares About Mt. Washington

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Update on Judy by Judy… and A Friend Named Tom

Hi everyone!!!! Maybe some of you who follow this blog are wondering, “Why hasn’t Judy told about climbing the mountain yet?” or “What about ‘da Coat–we hear there are some changes happening? Well, I have no excuse except that it is taking me longer to figure out just what is most important to tell you ... ...

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