Don’t Be Duped by Deep Brain Stimulation

Photo by Sherri Woodbridge

An article on Deep Brain Stimulation, by Dan Stark, recently came across my internet screen several days ago. I bookmarked it so I’d get back to it. It kept nagging at me to do just that and last night it kicked me into submission by means of a comment I received over it.

I think the reason I saved it and set it aside is because of the message it sends:

DBS, or Deep Brain Stimulation, is a god-send and although it does buy you time, as Dan Stark states in his article referred to above, eventually it fails.

It’s easy to forget this little machine, implanted into our chest and snuggled up near and dear to our heart, will some day give us up. It’s hard to think about our deep brain stimulator not working one day, leaving us to find our disease has progressed without us being aware of it happening. Or so it seems. What is easy to forget is that while we go walking without any aids, join our dance and boxing classes, eat without assistance, the little monster continues his deviant work of progressing the disease while we choose to think we’re going along on our journey just fine.

And we really can be – just ‘fine’.

But what this article reminded me, is that I need to remember to be realistic. While my unit may not give me up in the same way as it did to Dan Stark, I need to keep in mind that it could. You might ask why I’d want to think that way. Because I don’t want to forget this could be my last (for whatever reason) good day on my journey with Parkinson’s disease. If that is the case – then I want to live my best.

Any of us who have experienced Parkinson’s Disease for any amount of time know how it fluctuates and changes from day to day, moment to moment. We can be sitting in front of the TV one moment, blissfully captivated with our favorite re-run of The Brady Bunch and settled in with our popcorn and drinks and POW!!! The cramping features of dystonia hit you and the popcorn is spilled as you try to work out the pain. Any part of PD can hit at any time. It can be your constant, nagging companion or it can come and go.

Yes, even with Deep Brain Stimulation, there can be bad moments, bad days. Don’t be misled on the good days that flow together in what seems like the yesterdays of feeling good, that those good days are here to stay. But!!!! Do enjoy them. Cherish them. But don’t be duped and set yourself up for major disappointment.

As a commenter said on Facebook, in reference to Stark’s article, “‪Don’t be a “victim”. ‬

‪“DBS was never described, designed, or promoted to be a solution or cure, but rather, another treatment for an otherwise incurable, progressive disease. You had to have known that when you chose to undergo the procedure.‬

‪“You have been gifted with additional years of reduced symptoms that you would have otherwise not gotten without health insurance or the procedure.‬
‪Be thankful for the additional years of reduced symptoms, rather than a victim of some notion of medical mistreatment.”‬

‪Don’t dwell on the what could be but what is – now. Be thankful for each new day because each new day, whatever it brings, will bring something to be thankful for.‬

What Are the Odds of Developing Parkinson’s Disease?

Art by Sherri Woodbridge
Copyright 2012

I have been asked this question over and over and while I am no Professor Parkinson, I did do some research this is what I came up with

Lighter colored hair.  Yes, that’s right.  A person with black hair has the best chance of escaping a diagnosis of PD than that of a person with red or blonde hair, red being the greatest chance.  I don’t think dyed hair counts.

Family history.  Hereditary factors/genetics can play a part.  If you have a close relative who has Parkinson’s disease (such as a parent/sibling) your chances increase.

Men tend to be more at risk than women for unknown reasons. However, this fact can also depend on what country you live in.

If you are over the age of sixty, the likelihood of developing PD is greater. However, there are a select few rare known cases of PD starting at the age of two.

The Amish community seems to have the highest rate of PD among any other communities. It is thought that the culprit may be all the pesticides used in their farming.  Which leads to… Exposure to toxins playing a large part in some PD cases as well as those individuals who relied on well water for drinking and cooking.  This is due to the chemicals/pesticides found in the water. It is said that Nebraska has the highest rate of PD in the United States, most likely due to the pesticides used in their farming, as well.

Trauma to the head may play a role as damage is done to the dopamine that producing neurons in the brain.  If you were one to bang your head against the wall in frustration, well… you shouldn’t have.

Manganese, a known cause of Parkinson’s if the concentrations are high enough, is found in a town in Italy.  The concentrations there are high enough and approximately 410 out of 100,000 people have been diagnosed with PD.

Ethnicity has been studied, showing Caucasians have greater odds over African Americans.

Illicit drugs use may be a factor as the drugs have a bulls-eye target for the dopamine producing neurons inside the brain.

Studies have shown that PD is much more prevalent amongst welders, significantly higher amongst physicians, dentists, teachers, lawyers, scientists, computer programmers (young onset PD diagnosis greater for this group), clerical occupations, agricultural workers, hunting and forestry occupations were also positively associated with Parkinson’s Disease. Those people involved in manufacturing and transportation were less likely to get Parkinson’s Disease.

So… what does this all mean?  Here it is:

If you are a welder, physician, dentist, teacher, lawyer, scientist, computer programmer, person involved in clerical work, agricultural worker, hunting and forestry vocation person, and…  have a family history of PD, are male, are over 60, Amish and are growing manganese plants as a hobby; if you are Caucasian, take illicit drugs, banged your head against a wall, live in Nebraska, have red hair and a family history of PD, then chances are – you MIGHT get PD.  Then again, it depends on which country you live in, too.

Another interesting tidbit?  Those involved in the manufacturing and transportation fields were less likely to get PD.  Caffeine and smoking are said to help prevent PD.

I wouldn’t quit my welding job to pilot a jet, leave the Amish community, or move from Nebraska and take up smoking.  There are reasons, yes, why people get PD, even if we haven’t really pinpointed the specific culprit yet.  However, ultimately, because of God’s sovereignty, things are going to play out as He sees fit, whether we have black hair or polka dot hair, work in the forest or teach geometry, are male or female, Amish or Mennonite, prefer chocolate over strawberry ice cream.  And, if He sees fit to give us this disease, well then, He’s got to have a pretty good reason that I may never know or understand.  So, if you fit this category – just a normal person with Parkinson’s disease – don’t give up.  We’re all in this together and it doesn’t matter who you are, where you live, what you do or if you prefer strawberry or chocoate – we will get through.  However, might I say?  Why the chocolate, of course. Always the chocolate.

Journeying with you ~ Sherri