Day 19: It’s Not All Parkinson’s Fault

Day 19: It’s Not All Parkinson’s Fault

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Here something most people without PD don’t realize…

The time for a cure is

 

not tomorrow, not next week, not in the future, but 

Leonardo daVinci said, 

“I have been impressed with the urgency of doing. 

Knowing is not enough; 

we must apply. 

Being willing is not enough; 

we must do.”


So I ask you…


Time could be running out…

Help to find a cure for Parkinson’s disease.

©parkinsonsjourney.com

 

Day 5: What Parkinson’s Does…

Day 5: What Parkinson’s Does…

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What a person with Parkinson’s disease may to deal with on a daily basis…

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Day 2: Ten Signs that You Could Have Parkinson’s Disease

The following information appeared in a pamphlet made available by the National Parkinson's Foundation in the effort to bring awareness to PD.

Please note that Parkinson's disease is just one of several invisible illnesses that can be difficult to diagnose without an expert medical opinion, specifically a neurologist and/or a movement disorder specialist.

If you are experiencing three or more of the following symptoms, it is recommended you consult your doctor.

TREMOR OR SHAKING.

Have you noticed a slight shaking or tremor in your finger, thumb, hand, chin or lip? Does your leg shake when you sit down or relax? Twitching or shaking of limbs is a common early sign of Parkinson’s disease.

What is normal? Shaking can be normal after lots of exercise, if you have been injured, or could be caused by a medicine you take.

LOSS OF SMELL.

Have you noticed you no longer smell certain foods very well? If you seem to have more trouble smelling foods like bananas, dill pickles or licorice, you should ask your doctor about Parkinson’s disease.

What is normal? Your sense of smell can be changed by a cold, flu or a stuffy nose, but it should come back after you are better.

TROUBLE MOVING OR WALKING.

Do you feel stiff in your body, arms or legs? Sometimes stiffness goes away as you move. If it does not, it can be a sign of Parkinson’s disease. You might notice that your arms don’t swing when you walk, or maybe other people have said you look stiff. An early sign might be stiffness or pain in your shoulder or hips. People sometimes say their feet seem ‘stuck to the floor.

What is normal? If you have injured your arm or shoulder, you may not be able to use it as well until it is healed or another illness like arthritis might cause the same symptom.

Has your handwriting suddenly gotten much smaller than in it was in the past? You may notice the way you write words on a page has changed, such as letter sizes are smaller and the words are crowded together. A sudden change in handwriting is

often a sign of Parkinson’s disease.

What is normal? Sometimes writing can change as you get older, if you have stiff hands or fingers or poor vision, but this happens over time and not suddenly.

TROUBLE SLEEPING.

Do you thrash around in bed or kick and punch while you are deeply asleep? You might notice that you started falling out of bed while asleep. Sometimes, your spouse will notice, or will want to move to another bed. Sudden movements during sleep may be a sign of Parkinson’s disease.

What is normal? It is normal for everyone to have a night when they ‘toss and turn’ instead of sleeping.

CONSTIPATION.

Do you have trouble moving your bowels without straining every day? Straining to move your bowels can be an early sign of Parkinson’s disease and you should talk to your doctor.

What is normal? If you do not have enough water or fiber in your body, it can cause problems in the bathroom. Also some medicine will cause constipation too. If there is no other reason such as diet or medicine that would cause you to have trouble moving your bowels, you should speak with your doctor.

A SOFT OR LOW VOICE.

Have other people told you that your voice is very soft when you speak in a normal tone, or that you sound hoarse? If there has been a change in your voice you should see your doctor about whether it could be Parkinson’s disease. Sometimes you might think other people are losing their hearing, when really you are speaking more softly.

What is normal? A chest cold or other virus can cause your voice to sound different but you should go back to sounding the same when you get over your cough or cold.

MASKED FACE.

Have you been told that you have a serious, depressed or mad look on your face more often, even when you are not in a bad mood? This serious looking face is called masking. Also, if you or other people notice that you have a blank stare or do not blink your eyes very often, you should ask your doctor about Parkinson’s disease.

What is normal? Some medicines can cause you to have the same type of serious or staring look, but you would go back to the way you were after you stopped the medication.

DIZZINESS OR FAINTING.

Do you notice that you often feel dizzy when you stand up out of a chair? Feeling dizzy or fainting can be signs of low blood pressure and can be linked to Parkinson’s disease.

What is normal? Everyone has had a time when they stood up and felt dizzy, but if it happens on a regular basis you should see your doctor.

STOOPING OR HUNCHING OVER.

Are you not standing up as straight as you used to? If you or your family or friends notice that you seem to be stooping, leaning or slouching when you stand, it could be a sign of Parkinson’s disease

What is normal? If you have pain from an injury or if you are sick, it might cause you to stand crookedly. Also, a problem with your bones can make you hunch over.

Other symptom can include: depression, cognitive thinking issues, restless legs, dystonia, and more.

I Dare You

I received an email from someone with concern whether they may have the beginnings of Parkinson's Disease or not. I have met others who have Parkinson's disease, but not someone in the throws of wondering if the symptoms that they are experiencing are, in fact, Parkinson's Disease.

I keep wondering about him, I think because it takes me back to my diagnosis, to my days of wondering what was going on. I can relate so well and I can understand all too well.

He is scared, wondering if he has this disease that we would not wish upon anyone and I look back in my life to the place where he stands now – scared, uncertain, and desperate. I can now see, that even though the future is still uncertain, I have been blessed with a wonderful doctor, the support of friends and family. More than anything, I have been given the opportunity to encourage and come alongside others. I was not able to see those things then, the fear taking away everything else that was in my future and leaving a sense of hopelessness.

Isn’t the future, in reality, uncertain for each of us though, whether we have been diagnosed with a disease or not? None of us knows how the end will turn out or when will be the last time we will tuck our babies in bed at night.

I am reminded of a favorite quote:

“Dance as if no one were watching, sing as if no one were listing, and live everyday as if it were to be your last.”

That is how I want to live each day, whether I am fighting with PD or making peace with it. I want to dance without reserve, even if I stumble. I want to sing at the top of my lungs, even if others think I'm still whispering. And, I want live each day as if it is my last opportunity for anything, even if I am given a tomorrow.

It is a hard thing to do – to live that way. There are so many distractions, so many reminders that we are not ‘whole’. With distractions that plunge their way into our daily paths and constant reminders from our bodies that struggle against their own desire to be free from disease, we can choose to have an attitude of living life to its fullest and enjoy the journey (even if it’s not the one we would have chosen) to the best of our ability. It always seems better to wear a face of hope than that of despair.

I would like to encourage all of you, whether you have been dealing with a disease of any kind, whether you have just been diagnosed, or perhaps you are wondering if the symptoms that have just started are anything worth fretting over – live this day as if it were your last – dance and sing. Do it without reserve. I dare you.

 

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