Tag Archives: Parkinson’s disease

Signs and Symptoms of Early Onset Alzheimer’s Disease

IMG_9195.JPGYou cannot find your keys.  It could happen to anyone. Happens to me often. It happens to someone else I know all the time (but I’m not naming names).

You forget where you parked your car.  Happens to me if I’m along for the ride. Or the driver.

Life is stressful, harried, and  most of the time we have a lot on our minds and just aren’t paying attention.   A common occurrence. No big deal.

It’s January and you are sitting at the kitchen table and staring out the window as the snow falls gently on the ground and try as hard as you might, you cannot remember what season it is. ‘Spring?’ you think.  ‘Does it snow in the spring?  For heaven’s sake girl, it doesn’t snow in the spring.  Fall then – it must be fall.  It’s cold in the fall.  That’s it.’

That’s a sign to take seriously that you or a loved one may be experiencing the early onset of Alzheimers.  The inability to recognize or track dates or seasons is one of the first symptoms of early onset Alzheimer’s disease, which occurs in 5 to 10% of people under the age of 65.  It is not uncommon to see people in their 50’s with signs of early onset Alzheimer’s (EOA), but like Parkinson’s disease – not impossible.

A lack of motivation or sticking to a task can be mistaken at work as laziness when, in fact, EOA could very well be the culprit.  Instead of being properly diagnosed as an EOA patient, the individual suffering with symptoms in which they have no control over may result in being dismissed from a good job, associated with mental problems, or other consequences and/or misjudgments.  Relationships (especially the loss of intimacy) may also begin to deteriorate when one or both parties do not understand the connection to something greater at fault.

While losing your keys once in a while or forgetting where you parked your car can be absolutely normal, misplacing things consistently and not being able to retrace your steps to find them could be a sign of EOA.  Making a bad decision from time to time, missing a payment once a year on utilities, and forgetting a word to describe what you are trying to say – all normal.  However, continually having poor decision making abilities, having a hard time holding or having a conversation, or the inability to manage your budget – these are big players in early onset Alzheimer’s and need to not only be taken seriously, but action should be taken for a diagnosis as to why these symptoms are occurring.
Alzheimer’s does not happen overnight, regardless of age.  It takes different degrees of progression, depending on each individual.  A person of any age will experience a few to several symptoms.  Common symptoms are:

  • forgetting information learned recently
  • asking to repeat information over and over again
  • inability to remember without help (notes, family members intervention, etc)
  • trouble following familiar recipes
  • lack of or difficulty in concentration
  • difficulty doing familiar tasks (heating in a microwave, TV controls, etc)
  • taking a walk and losing your way
  • visual images are confusing (difficulty in reading and judging distance)
  • difficulty speaking or being part of a conversation due to forgetfulness when trying to form words
  • misplacing items and inability to retrace steps (not uncommon to accuse others of stealing)
  • judgment decreases in regards to handling money
  • personal hygiene may suffer
  • removal of one’s self from normal activities; becomes more introverted
  • mood and personality changes may occur (suspicious, depressed, etc)

It is important to remember that a person may be experiencing some of these symptoms and not have any connection to having EOA.  A proper diagnosis needs to be made by a knowledgeable physician.  It is also important to remember that if diagnosed with early onset Alzheimer’s disease, a person may only experience a few of the symptoms listed above while another, several.  Just like Parkinson’s disease and most every other disease, each person is unique and the disease is unique to each person, although similar in many ways.  The best advice when determining whether you or someone you love may be experiencing EOA is to see a physician.

 

Dystonia and Bear Hugs

imageDystonia.

A neurological movement disorder that deals with sustained muscle contractions, causing twisting and repetitive movements or abnormal postures and can be a part of having Parkinson’s disease.

Symptoms of dystonia can include disturbed sleep patterns, tiredness, depression, poor concentration, change in vision, and more.  Normal activities can be more difficult to carry out.  Dystonia mimics other diseases as well, making it extremely important to not self-diagnose.  Neurologists and Movement Disorder Specialists are physicians specializing in various areas such as dystonia and Parkinson’s Disease, with the ability to clearly differentiate (although sometimes difficult in doing so, depending on how the disease manifests its symptoms) the similarities of diseases with commonalities such as these.

As well as the experiencing the symptoms listed above, dystonia tends to lend itself to continuous pain, cramping and muscle spasms. Because of the areas that can be affected, penmanship may become altered, dropping items becomes common, turning pages becomes a struggle.  The list can go on.

Focal dystonias are the most common types of dystonia are known as focal dystonias.  Another – Cervical dystonia – affects the neck muscles, whereas blepharospasm dystonia is known to affect the muscles around the eyes.  When the jaw and tongue muscles are affected, it is known as oromandibular dystonia.  The voice can be affected, causing a ‘crackling’ sound and is known as spasmodic dysphonia. When a patient suffers from both blepharospasmodic contractions and oromandibular dystonia, it is referred to as cranial dystonia, also known as Meige’s syndrome.

imageWhile some cases can worsen over time, some can almost be mild in their degree of symptoms and their affects on the body. Many drug treatments have been successful in managing symptoms, but recent treatments using botox have proven extremely successful for 3-6 months when injected into the affected areas.  Many PD treatments, including deep brain stimulation, are used for treating dystonia and are quite promising in helping the patient to cope with the disease.

What may seem like an odd treatment may actually be one of the best received and most helpful… a big hug. It has been proven that when encased in a tight ‘bear hug’ the tension and tightening of the contracted muscles are often released when squeezed tightly.

There aren’t many diseases (if any, that I am aware of!) that respond to such a simple, welcomed treatment. So – the next time you’re struggling with stiffness, spasms, and pain associated with having Parkinson’s disease and/or dystonia, ask a loved one to give you a tight bear hug and hold you for a few minutes.  You’ll  not only feel better physically but in every other way as well and so will they.  There is healing in a hug – for everyone involved.

Welcome to Parkinson’s Disease

Finch_Silhouette.JPGSeveral years ago, I attended a women’s conference and one of the speakers spoke on how sometimes we make plans for our life, only to have them over turned by the curves and bumps on the road we are traveling  – or planned to travel. Kind of like planning to take a trip to Holland and unexpectantly ending up in Italy.

This is my version of that story…

Welcome to Parkinson’s Disease

Life is much like planning for a fabulous trip. A once-in-a-lifetime-around-the-world excursion.

Life and its expectations. You plan for them – college, marriage, babies, moving, retirement. It’s all can be like planning for that fabulous get away to somewhere like say… Italy.

You buy a bunch of guidebooks. You do your Google research for the best places to stay, sights for you to see, airfare specials for you to book, and more. You make your wonderful plans. You will go to the coliseum. See Micheangelo’s David. RIde the gondolas in Venice. And perhaps you will educate yourself by learning some handy and witty phrases in Italian. Meanwhile, feeling unusually tired lately, you hope the trip will rejuvenate you and you will have energy to see and do it all.

You cannot wait  for all the planning to come together as you excitedly count the days until your departure. All the weeks, months, and maybe even years of anticipation and hours of preparation lead up to that moment. The day you leave. Your bags are packed with everything you will need and it’s a no brainer that everything is going to be perfect as you spend the next three months abroad.

After all, you planned for this.

Tripping as you step onto the plane, you then find your seat and settle in, all the while hoping that no one saw you almost fall.  Now shaking (something you’ve noticed you do even when you’re not nervous), you close your eyes but find it difficult to sleep, chalking it up excitement. Several hours later, the plane lands and you can hardly wait to breathe in the wonderful, warm air of Italy. The flight attendant comes on over the loud speaker and tells you that you may now take off your seat belt and in a warm and friendly voice adds, “Welcome to Parkinson’s disease!”

“Parkinson’s disease?!” you say. “What do you mean, Parkinson’s disease? I signed up for a vacation in Italy. I planned for a vacation in Italy. I’ve spent the last ten years thinking about my vacation in Italy! Dang-nabbit!!! I’M SUPPPOSED TO BE VACATIONING IN ITALY!!!”

Now, the important thing to remember is that you haven’t been taken to a horrible, disgusting, filthy place, full of pestilence, famine and the like. You have just been re-directed to a different place in life.

So, now you must go out and buy new guidebooks on this new season in life called Parkinson’s disease. And, you must learn a whole new language. Words like basal ganglia and dopamine and dystonia and so on. So much more. And you will be meeting a whole new group of people that you never would have met if you had gone to Italy. Other people who have been on a journey with Parkinson’s. Patients. Caregivers. Movement disorder specialists, to name a few.

This is not what you had envisioned. Not what you had dreamed of or imagined. It’s a different place. A place where disease is present. A place where now all  other things in your life have been, could or will be affected. It may now be a place where your marriage changes. Retirement may come sooner. Your  kids may have a hard time understanding. This life you are now living with Parkinson’s disease may have thrown you for a loop. It certainly isn’t what you had hoped for. This life you are now living is slower paced than that trip you had planned to Italy and it is certainly filled with many unknowns, but after you have caught your breath and looked around, you begin to notice that Parkinson’s has something, in a round about way,  something to offer…

You notice that Parkinson’s disease affords the opportunities to see things differently. It offers  the ability to deepen your level of compassion and understanding. Parkinson’s disease allows you to meet many new and different people you would never have met if you had gone to Italy. It gives rise to a deeper faith, thereby strengthening your relationship with your Creator.

And yet, everyone you know is busy coming to and from Italy – that place that you had always dreamed of going to and maybe even spending the rest of your life there. They all seem to be bragging about the wonderful life they’re living there, or at least the wonderful time they’re having as they visit. And for the rest of your life you will think to yourself, “Yes, that’s where I was supposed to go. That’s what I had planned.”

And the pain of that loss – that dream – may never, ever go away because that loss is a very, very significant loss. But, if you spend the rest of your life (or even a part of it), mourning the fact that life isn’t exactly the way you had planned – that you didn’t get to go to Italy and you ended up on a journey with Parkinson’s disease instead – than you may never be free to enjoy the very special blessings that this life has to offer. So…

Welcome to Parkinson’s disease. 

It’s not what I had planned either but here I am. I would much rather have been able to stay on course and made my way to Italy and writing you from atop the Eiffel Tower, but alas, my Pilot had other plans. So – having come here before you or perhaps feeling a bit better than you are feeling today on your journey, I am here to walk with you, beside you, and together under that guide of our trustworthy Pilot, we will forge through this unplanned and unimagined journey and when we get to the end of this road, may it be said of us… “Well done, good and faithful travelers.”

(That’s the new plan, anyhow!)

Get It Out

imageLast summer, the findings of a study conducted by the University of Houston were released regarding the well being of female breast cancer survivors, specifically Chinese women. This ethnic group was chosen primarily because of the stigma cancer holds within the Chinese community.

“Unlike the Caucasian population, many Chinese have less knowledge of breast cancer and they feel that the cancer is very threatening, and they associate it with immediate death,” said Qian Lu, assistant professor and director of the Culture and Health Research Center at the University of Houston.

The study, which was published in Health Psychology, a scholarly journal, was based upon writing. Each of the 19 participants in the study (based in the Los Angeles area) were given health assessment questionnaires before the study began, followed by three sets of instructions.
In week one, patients wrote about their deepest thoughts/fears/emotions in regards to their experience with breast cancer.

Week two, they wrote about coping mechanisms they used to relieve stress brought on by the disease, and in week three they were to write about their positive thoughts and feelings. The patients who put in 20 to 30 minutes each day regularly (3-4 days per week) for the three week period saw positive change in relationship to their immune system.

The report stated that the purpose of the writing exercise was “to facilitate emotional disclosure, effective coping and finding benefit, which would work together to bring stressors and personal goals into awareness and regulate thoughts and emotions relevant to the cancer experience.” It also went on to say that the “release offered by writing had a direct impact on the body’s capacity to withstand stress and fight off infection and disease.”

So – what’s this have to do with Parkinson’s disease?

I don’t think Chinese women have an edge when it comes to writing about their illness, disease, sickness, heartache, joy and/or thanks-givings. No – I believe that writing is good for anyone’s mind,  soul,  heart, and  spirit. You can scratch down (or type out) your thoughts and feelings and say whatever you choose in regards to how you’re feeling. It’s a release of pent up frustrations, anger, fear, confused thoughts, sorrow, grief – the list could go on and on. It’s a release when no one else will listen or when no one may understand. It’s called journaling. It’s therapy in its least expensive form (besides the one on one sharing of conversation between two good friends).

Journaling (or as the study referred to – writing) will not cure cancer. It will not cure Parkinson’s. But it will allow for a place to dump the stress and walk away, perhaps leading to a feeling of life being a bit lighter. When you’re body isn’t focused on fear, grief, sorrow and the like, it has a greater capacity to “withstand stress and fight off infection and disease,” as Lu stated above. Journaling offers the opportunity to get out your fears without feeling foolish. To release the grief over feeling you’ve lost something valuable. To be thankful for what you do have.

And that last sentence is important…

If you spend your time journaling everything negative about your life with PD, your life with PD will be anything but positive. There are still good and beautiful things to behold in the midst of this journey. So, if you are thinking about journaling your life with Parkinson’s disease, either as a patient or a care giver – release the fears, the unshed tears, the grief and the sorrow onto paper but make sure you include and end with the positive. Always end with something positive.

It’s there. I promise.

Keeping What I’ve Got

  Dear Doctor, I’ve come here today

To get a new body, give my old one away

My feet – they stumble

They trip and I fall

And my brain’s becoming sluggish – but that’s not all.

 

My fingers won’t move the way I move them

My arms and legs they shake

You’d think I’d learn

There are no returns

On the parts of our bodies that break.

 

It’s not getting any easier

Other things are going wrong as I speak

Do you think you could do something, 

Somehow, anything

Your expertise is what I now seek.

 

I’ve put in for a new toe or two

The ones I have are not working well

They hurt, they bend

It’s becoming a trend

And hasn’t been too terribly swell.

 

Yet, doctor, you know – I’ve been thinking

About keeping at least my two eyes

They’ve helped me to see 

Incredible things

Like rainbows, the sunset  and  sunrise.

 

And you know – about my hands,

They’ve made so many things

And I’ll keep my voice

(I don’t have a choice),

My grandkids like when their Grammy sings.

 

And then, there are my legs,

They really have been good to me

They carried me here,

They’ve walked me to there

They’ve supported me constantly.

 

And let me not forget my heart

That has beat within every day 

I’ll keep that too

(it’s the least I can do),

For it’s guided me when along life’s way.

.

 

So I guess I’ve changed my mind

And I’ll keep all that God’s given me

I’ll enjoy what I’ve got,

‘Cuz I’ve got quite a lot,

I’m alive, been forgiven, and set free.

 

 

 

 

 

 

 

 

 

 

 

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