A Metamorphosis Miracle

Photo by Sherri Woodbridge, ©2011

Class, today we are going to learn about… Metamorphosis.

Now, the word metamorphosis means to change and/or transform. This word is used to describe the life and transformation of a little caterpillar. The part we will focus on today is the chrysalis stage, when the spunky little critter forms a cocoon and undergoes miraculous changes in secret and emerges beautiful, soft butterfly

Let’s look at the process. Here he comes, little Clyde, a short, chunky, furry sort, lumbering along on the branch of transformation. He’s pretty tuckered out already, having already shed his skin several times in his lifetime (depending on what kind of little guy he is), having become stronger and stronger, bigger and bigger with each turn he makes. A regular body builder among the caterpillar clan.

Now, Clyde has an agenda. He has a job to do and eventually he finds the perfect spot for his work to begin. He doesn’t know how to explain why he’s about to do what he’s about to do, after all, we all know that caterpillar’s can’t talk. However, he just has this ‘feeling’ that he must find the perfect leaf on which to do what he’s about to do. And for Clyde, this truly is the first day of the rest of his life.

Admiral Butterfly, ©2011 Sherri Woodbridge

No more will he be trying to hide from inquisitive children who find him fascinating and hold him much too tight. No more will he barely miss the soles of heavy feet as he tries to cross the sidewalks. Yes – today is the beginning of a new life. For today, Clyde is going to begin to be transformed.

As Clyde decides the large maple leaf tucked near the curve of a branch beyond the reach of a large child, a teacher looking for examples of nature’s miracles, or gusty afternoon winds, he makes himself comfortable. Quite talented, Clyde hangs upside down on the leaf and begins to spin himself an amazing cocoon, in which he will hide for the next two weeks or so.

Now, Clyde the caterpillar isn’t aware of all the mumbo-jumbo, but now inside his comfy, cozy and protective ‘cubby’, known as the pupa or chrysalis – Clyde will transform into something amazing.  Sort of like a very long magic show.

Photo by © Sherri Woodbridge 2011

Clyde will lose his stubby little legs and trade them in for two long and slender ones. His bulging biceps will somehow become delicate wings that will enable him to float and flitter about, taking him to unimaginable new heights among his familiar world. He will develop a long tongue that drinks of a flower’s nectar – flowers of plants he use to chew up one side and then down the other. Two antennae from which to smell will emerge from his head where before there were two microscopic ‘smellers’, instead.

***

It has been almost two weeks. The cocoon shakes. Clyde has finished his work and is ready to reappear.

His muscles have disappeared and he is soft and weak. Only by repeatedly beating his new-found wings will he become stronger. As he flaps and flutters his wings in a flurry of excitement, his senses acclimatize themselves to the surroundings where he has reappeared and blood and oxygen begin to fill his system so that he is able to function properly. Clyde keeps at this ritual for about an hour, when he is then ready to leave his little cocoon and begin his new life.

What does all that have to do with Parkinson’s disease?

Sometimes it seems there has to be more to this life than living and dying. A popular Christian recording artist, Steven Curtis Chapman, wrote a song based on that idea…

“And there’s more to this life, than living and dying

More than just trying to make it through the day.

More to this life, more than these eyes alone can see

And there’s more than this life alone can be.”

Swallowtail Butterfly, © Sherri Woodbridge 2011

And truly, there is. So often, we who struggle with different aspects of having a chronic disease, can often wonder what that ‘more’ is. Some days it’s all we can do to make it through this day and on to the next one. Maybe it’s the physical aspect – the slowing down, the falling, the intense pain, the shaking. Maybe it’s the mental – the forgetfulness, the slurred speech, the effects of the medication on the other parts of our brain. Or maybe it’s the emotional – the ups and downs, the what-ifs and the fears.

There is more. While we flounder in our faith, we hold onto hope. A hope that says a cure is coming. And while we wonder when that cure will get here, through the days, months, and perhaps even years of waiting for that day, we trust in a mighty God who keeps His promises. Promises that claim constant companionship.

Be strong and courageous. Do not be afraid or terrified because of them, for the LORD your God goes with you; he will never leave you nor forsake you.” Deut 31:6

Promises that claim His sovereignty in a chaotic world…

“For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future.” Jer. 29:11

Cabbage White Butterfly, © Sherri Woodbridge, 2011

Promises that claim His strength in our weakness…

That is why, for Christ’s sake, I delight in weaknesses… in difficulties. For when I am weak, then I am strong. 2 Cor 12:10

You see, it is in the waiting – in the chrysalis stages of living – where we are changed. In the pain and through it. In the heartache over having this disease (or some other one). It is in the stage where we realize how fragile, frail, weak, and weary we are where we are made strong. It is when we don’t give up hope and we fight to live. We flap our wings and while we may not fly to new heights physically, mentally we can…

…those who hope in the LORD will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint. Is 40:31

When we start out in life, we are much like Clyde, just lumbering along, minding our own business and then poof! Someone squashes us (not literally). Being ‘squashed’ can be…. we get bad news, someone we love passes away, we’re told we have Parkinson’s disease or a loved one has Alzheimer’s.

That is the perfect place in which to wrap up in the Lord’s cocoon – his protection – and rest in Him. When we stay close and allow Him to protect and cover us, He transforms us into something much, much more beautiful. The result is worth the wait, even if the twelve days turn into twelve months that might turn into twelve years. During the process, we can come out of the other side perfected if we will choose to trust during the transformation.

I see it every day among people with Parkinson’s and I know it – the transformation – exists in people with other chronic and or terminal diseases, other illnesses and… let’s not forget – caregivers.

If you’re reading this – don’t give up. Don’t give in. There is more to this life than living and feeling as if you’re dying. You have a large part in the living. You may not believe it, you may not feel it – but you do. A very important part. As you walk through this time of ‘chrysalis-ness’, a time of transformation, of trusting Him to be there, to guide, to carry and hold you – just hang in there – like Clyde did. It won’t be long before this transformation is complete and you will have emerged a beautiful and strong new creation, flitting about with new wings. I know. I’ve seen it happen.

Journeying with you,

Monarch Butterfly, © 2011 Sherri Woodbridge

Things About Doctors

Dr. Santiago, Black Doggy, and me

I have a new doctor. No, I didn’t dump mine and contend for another. As most of you know, mine lost his practice because of lack of funds, and cutting back on Medicare closed the doors. I can say with certainty that he was the best in the west.

A patient never waited more than ten minutes, tops. His nurse was the best. He spent time with you as if you were all that mattered on his list of patients for that day. You knew he cared and understood what you were dealing with. He explained things in such a way so that you felt educated when leaving and could understand yourself what was going on inside of you. He was compassionate and so kind.

And he’s not there anymore.

So, I searched for a new doctor.  Was pointed to the best in town, I was told.  (Obviously they didn’t know the best in the west.)  And while he was ‘okay’, the difference between the old and new was blaring. This new doctor (new to me but near retirement) was kind, smiled at the right times and all the rest, but he was not Dr. Anthony J. Santiago, MD. MDS. VIP. Didn’t even come close.

And while I may have been pointed to a new doctor, he certainly wasn’t Dr. Santiago. I didn’t know him and he didn’t know me. I was quite confident that I was not going to enjoy these ‘new’ visits, unlike those I had with Dr. S- who always had a smile, a laugh, a genuine concern for each of his patients. And, I NEVER had to strip down to my skivvies for an exam. What is up with that? He quickly became my old doctor immediately.  (Note to readers: If you think what a doctor asks you to do is weird, it’s probably weird. I surveyed about 20 people with Parkinson’s and not one has ever been asked to disrobe for a PD exam.)

I came home and cried. I just want Dr. Santiago back but I know I have to face this. Problem is – I don’t want to.

Meanwhile, another reason I want my doctor back is for another situation the doctors are looking at. They’re wondering whether the lupus that they thought was a brain tumor and then MS, then ruled all that out for mere lack of evidence, then thought perhaps it was the PD starting in my early 30’s instead of 2004 – (take a breath) – well now they’re back to looking at lupus since my ANA is off the charts.

Until then, we are promised only this day and I am so grateful I know Jesus and the unrelenting fact that we don’t go through anything alone.  So very grateful.

Journeying with you,

Shog Blogs and Cow Bells

Judy atop Mt. Washington

Almost one year ago I sent in what I called a shog blog to Sherri to add here at Parkinson’s Journey (PJ for short). That was my coined term for a blog that shared a ‘lil of this and a ‘lil of that. So, I’m doing it again for two reasons: I thought it would be easier blogging off of a previous idea but included updated items and secondly, I just read Sherri’s blogs “Making Yourself Amazing” and the poem about the lady in a black wheelchair and I’ve laughed so hard, there is no way I can think seriously!

Now, when my friend Sherri writes, she may ask you questions and then she’ll give you her thoughts on the question from her heart and knowledge. Not me! My questions are most often open ended (and you are always welcome to comment on them)!

I’m not sure if over a year ago when I asked the origin of term “blog, if anyone ever answered, so I looked it up online and at ASK.com. It said, “The word Blog came from the words Web Log” – they just scrunched the two together. It is a journal of activity online that is updated often , usually daily. Definition thrown in there for free. So since I share some logged things I call this a ‘shog blog’. Ok, so I pick the letters I want to use!!! This blog of mine today may have some grog in it (grumpy log) and it could be a ‘quog blog’ (question log), but hopefully not too much of a ‘phog blog’ (philosophical blog) or a ‘bog blog’ ( bad blog), but most probably a crog shog blog (crazy sharing blog)!!!!!!!!!!

Here it goes:
Shog blog item 1:
You’ve heard that you should watch the company you keep? I must say I feel quite special by reading some of the names and knowing many of you who follow PJ!!!!! And of course ‘da boss blogger here is tops in my book (I know you will thank me later, Sherri–I’ll take Oreos or almond M&Ms as payment).

Shog blog item 2:
It seems like this year went by fast, don’t you think? Or is it just because 2009 wasn’t a leap year (2010 isn’t either but 2008 was—fyi). So many things have happened that I’ve gotten to experience. I really need to write my family’s yearly summary for 2009. It might get done while 2010 speeds by.

Shog blog item 3:
I have decided that Arial 18 is now my favorite default font. I used to use, and be able to see, Arial 14 but along with age comes some eye strain…it will probably change to Arial 24 by the end of 2010. Remind me and we’ll look back at this and evaluate…lol.

Shog blog item 4:
I got into ‘bongo playing’ this year. It has become a stress relief therapy at times for me. My husband has enjoyed getting me little accessory musical items to go along with it. First a pair of conga drums and a nice stand to hold them and the bongos (believe me it is heavy and a major production to take all my drums anywhere).

Next, he bought a chime set and a ratchet noise maker (i don’t know the real name for it, sorry..you roll it around in your hand and it the metal beads run over the bumpy metal layer underneath it). Ok, and I had an old cow bell that I pulled out to add to the collection. Now with Christmas 2009, my sweet hubby bought me a tambourine, a nicer cow bell [Sherri’s note: You can never have too much cow bell! More cow bell – we gotta have more cow bell!), a block bell, and a triangle and a very nice apparatus to hold them on my other stand.

We were at the mall over Christmas time and saw our local community band perform. He took great joy in mentioning that the percussion section didn’t have much that I did not have in my collection at home. After Christmas I told him, “Well, honey, I don’t have a xylophone set, but Valentines day is only 2 months from now!” Do I know how to drop a hint or what?

I have shared some of my bongo playing ability in some short video clips on my Facebook page. Ok, it may be more like I have ‘tortured’ my friends by posting bongo playing videos on Facebook, but it is something to do in my spare time and no one really gets hurts, now do they? That is a rhetorical question–you do not have to comment below…Be nice! ..Remember, Santa is already watching you for next year’s booty!

Shog blog item 5:
Our family has survived a significant milestone this year. My daughter got her driving license in October and has been running the roads solo in her little silver Saturn Vue. So you have fair warning if you live in or around east Tennessee please slow down for any silver streak coming toward you! lol She has done pretty good, so let’s all keep praying for such!

Last shog item of the year 2009 by Judy here on Parkinson’s Journey:
I was thinking recently about how many different places and various activities I had been involved in within the last month. This being December, you would think mostly Christmas activities or places, but look here…. within the last month I have:
- been to a hospital (to visit someone several different people)
- been to a funeral
- been to a baby shower
- been to a wedding
- been to a the doctor’s office
- been to a Christmas party
- been to a tea party
- been in the hot tub while it snowed outside
- been without power for 24 hours when it snowed 6″ here
- been blessed to have my mom still here (sick with cancer)
and probably some other things of interest but I’m getting slow and need to take some medicine, so I’ll end this shog blog.

I hope you have a wonderful new year as 2010 rolls around. Please remember to celebrate responsibly but as happily as possible. You all are awesome. Thank you for encouraging me throughout this past year! And I look forward to what we can do together to encourage others with Parkinson’s disease or others who just may pass through. My prayer is that we will all endure life’s trials and be stronger from them!

Happy New Year!!

- Judy

The Aftermath of An Adventure

This isn’t a poem, but some thoughts that were running through my mind as I look back on getting home from my West Coast adventure:

Photo of Mt Shasta by Judy Hensley, ©2009

I’ve joined again the reality of my life routine

after time spent with friends across the states

I was so proud of how my PD body coped on the trip

but once home a combo of jet lag and the delayed physical overload on my body ….came and hit me hard.

I sat in a chair most of one day waiting on meds to work and help me move

When I walked I scooted and found I could do little productive work

I had slept well for once but now my body seems encased

and I speculate if the next day would be any better or not

On top of returning home, the regular schedule resumed

with extra items falling in the empty spaces of time each day

I want to scream and say “just let me catch up to the normal routine!!!”

for I know the extras will make my PD hard to rein in

There I go trying to think I can push through it all

but in my heart, I know there will be consequenses should I go it alone

So I tuck my pride inside and ask for some help to stem the tide

It is not getting any easier to meet my goals after 6 years of PD invading my body.

It causes some emotional pain when grander goals can no longer be obtained

But adventures are still worth planning, attempting, and achieving ..

even if they are not as grand and the speed to accomplish them is going down.

so I set smaller goals and celebrate ones that are accomplished…and it adds to my joy.

Some days the accomplishments may be few and most insignificant

depending on how demanding of my strength PD becomes

but as long as I can have some hope, and strive to cross even a small finish line

I’ll have pride that I have not let PD win

And minute by minute, day by day, year by year,

I will endure until someone finds a cure

or until my Maker says it is time to be made new in a permanent home

then I will lay down and my mind and heart will be content

I’m seeing that through the bad PD days

so much like an overcast day with lots of rain

there can come the minutes or even seconds …

of sunshine and blessing like a beautiful rainbow.

I’m hoping at the end of one of my rainbows

there will not be a pot of gold but a pot with plenty of PD cure inside

but if it never comes to be, may I still stand in wonder

….at what my God has brought me through

…..and give Him the honor and glory in all I do!
~ Judy