Tag: living with parkinson’s disease

Harping On About PD

It’s been a while since I’ve posted. There are several reasons for this. trT – I didn’t have a computer for a while and took some ‘time off’ – I haven’t been feeling up to par – I wondered if I really had anything of important to share that was worthy of print Then I ... ...

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Judy on, “A Hard Reset” – A Must Read!

Well gang, I first want to say how proud and amazed I am at the efforts and reports that I saw concerning your efforts for Parkinson’s Awareness in the month in April!!!!  Thank you so very much for your efforts….I know for some it was not easy!!!!!!!  And as for myself, we will not specifically ... ...

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You Can’t Be Serious

When talking about symptoms of Parkinson’s disease, you usually hear the basics when it comes to listing them all.  Recently I ran across a question, posed by a PD patient and answered by an online geriatric nurse that specializes in caring for people with PD.  The question?  How do I know when I’m close to ... ...

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Parkinson’s Awareness Month, Day 10: Team Parkinson’s

Parkinson’s Awareness Month, Day 10: Team Parkinson’s – The Captains, The Players, The Benchsitters, and The Fans Whether you’ve got ‘regular’ Parkinson’s disease (disease manifests itself after age 55-65) or have been diagnosed with Young Onset Parkinson’s disease (PD manifested before age 50), sooner or later you’re going to want to talk to someone who ... ...

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DBS Part 2 – Getting Plugged In

  This past weekend we repeated the trek south to have my regulator programmed and my stitches removed.  I couldn’t decide which I was looking forward to more – having my stitches removed so my head would finally stop itching or having the unit turned on. We arrived in Phoenix Monday evening and made sure ... ...

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Five Words that Counteract ‘I Don’t Know’… I Don’t Want To Know

I don’t know. Often when asked, our response to the question, “What will happen to you?” in regards to having Parkinson’s disease is, I don’t know. It’s not that we don’t know, but we’re not certain that what we know, is what will be.  And, it’s not that we don’t know, but we are all different ... ...

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Grieving Over Parkinson’s Disease

Well, two more days until my head stops itching!  If someone were to ask me today what the most annoying thing about having DBS surgery is, my response would be the itching from the stitches.  Needless to say, it’s DRIVING ME CRAZY!!!  But, I am not complaining – not at all.  Occasionally you will see ... ...

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DBS… Been there. Done that.

How did it go?  I’ll tell you… After a 20 hour drive, we pulled in to Phoenix in time for my MRI.  We thought, since we were about an hour early we’d check in first, but as we waited for the help desk in the hotel, we glanced at the clock and realized we were ... ...

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Excerpt from Upcoming Book… Shaking On the Inside

Many of you have asked how my book is coming.  THANKS FOR YOUR SUPPORT!!!  It’s coming along great, actually.  Here is a sneak preview.  This excerpt is from Chapter 6: Fear of the Unknown… I remember meeting my son for lunch one day and as I got out of the car, my foot was dragging ... ...

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I Just Wanna Dance… Kay Jenkins

You will cry… get the Kleenex.  But – it gets better.  It gets great.  I promise. Thanks Kay, for sharing your story – for all of us… And, special thanks to Jim Harry for making this video possible. I Just Wanna Dance – Story of Parkinson”s Dise ...

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