Another Day on the Journey with Parkinson’s

another day
another handful of pills
another day masked with pain

tripping over my own two feet
choking on nothing
being told to speak up
being told to ‘Smile!’
wanting to scream,
“I am yelling! I am smiling!”
but they think I can do better
they think I am not trying hard enough
they’re wrong

I am
doing my best

trying so hard to maintain
to hang in there
but some days
are so

the shadows of despair
cling to my heels
darkness clamors for my joy
and seeks to destroy
my happiness
it beckons me to come
to give up
to give in
to the pain
that wreaks havoc within soul

oh soul,
disheartened heart,
despairing spirit

I will
rest in His arms
and wait patiently for Him
that I might
boast in Him
boast of His goodness
His faithfulness

the afflicted will hear
the afflicted will be delivered from
their fears

happy is the one
who makes You
their refuge

Some Days

Some days are okay
some days are not

Some days

I just get so tired
of this little monster
following me around
telling me I’m a burden
telling me I’m losing it
telling me I’m not going to get any better

Telling me
shouting to me
that some days
are not okay
that those some days
will someday
come to an end

And I know that
and tears
begin to fall

But some days
are okay

I tell myself
I’m not a burden
that some day
it will end
but not today

Today I will live
to the fullest I can
today I will listen
to the Voice
that beckons me
to not be afraid of this valley
and it’s casting shadows
and to trust
in the One who holds me –
the One who silences
this little monster
and tells me
that some day
it will be over
and that is the day
I will be home

Sometimes Only God’s Word

Roses like Peonies
Roses like Peonies

Sometimes, we despair. Sometimes we lose hope and feel we are withering away.  Sometimes we feel like grieving over things we have lost to a disease that can ravage our body until it seems nothing that is ‘us’ remains any longer.

Sometimes, all we need is a little encouragement. Sometimes hope will and does remedy what is ailing us at the moment. Sometimes hope and encouragement can only come through the truth of God’s word.

And. So, may His truth encourage you this day as you remember that it is He, and only He, that can fill us with joy as we face trials in life that attempt to bring us down and strip us from the heavenly joy which is promised to those who believe.

Consider it pure joy…whenever you face trials of many kids, because you know that the testing of your faith develops perseverance. Perseverance must finish its work so that you may be mature and complete, not lacking anything. …Blessed is the man who perseveres under trial, because when he has stood the test, he will receive the crown of life that God has promised to those who love Him.
James 1

He who began a good work in you will carry it on to completion until the day of Christ Jesus.
Philippians 1:6

Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests before God. And the peace of God, which transcends all understanding, will guard your hearts and minds in Christ Jesus.
Philippians 4:6-7

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