Three Little Words That Are Feared Most

There are three words in the English language that many people with Parkinson’s disease fear. Three little words. Three little words that can drive a person crazy. Three little words that can cause a person to feel desperate. Three little words that can destroy.

I don’t know.

How long have I had this disease? I don’t know.

How did I get this disease? I don’t know.

How long do I have to live? I don’t know.

Will my children get this? I don’t know.

Your doctor says it. You say it. You live it. You breathe it. You feel it.

You have an idea how things might and possibly will go, but you’re not sure because everyone wears PD differently. One person can have it three years without significant progression and another for a year and there is tremendous advancement in symptoms. Why?

I don’t know.

In the I don’t know moments of life, isn’t it good to know that there is One who does know? That there is one who is sovereign and faithful to bring us through any moment, even if it’s filled with uncertainty? To know there is One who knows the beginning and the end and every little detail in between? One who has promised to never leave us or forsake us?

This I do know… He is faithful. Faithful to provide what we need when we need it – strength, wisdom, comfort, peace and more. Faithful to provide in our greatest moment of need – when we don’t have the answers.

When we just don’t know, He does.

Your Personal Mountain

There’s been a lot of talk lately amongst some of the Parkinson’s community about climbing mountains. Recently, a group of people, which included our own Judy, climbed Mt. Washington in New Hampshire in order to raise funds and awareness in an effort to find a cure for both PD and Alzheimer’s disease. You have to view her video of her experience on how the climb went. You’ll be so very encouraged, inspired, and touched—guaranteed. (Go to Judy’s Mt Washington )

Yesterday, I received a post comment from a 29-year-old young woman, by the name of Brandi Roman, who has had PD since the age of 25. She has just recently finished climbing her own mountain in an effort to bring awareness to the PD cause. She and some others together climbed the highest mountain in her home state of Montana—12,807 feet of a mountain called Granite Peak. You can check out http://www.summit4parkinsons.com/wordpress/.

What motivates people to do stuff like this? First, you have to see beyond yourself—more than just feeling better merely for your sake—you have to want it for all mankind. Second, you have made a conscious decision to stand and fight, no matter what. You have decided that whatever disease you have, it doesn’t have you—you’re still in control and calling the shots. You’re not giving up.

Brandi’s mountain was 12,000+ tall  in Montana. Judy’s mountain was Mt. Washington in New Hampshire. We who live with a chronic disease are all climbing mountains, but they may take a different form than steep peaks and rocky terrain. Your mountain may be walking one lap of a football field for a fundraiser or forcing yourself to walk a little further today than yesterday. It may be joining a support group and getting out and meeting people or just accepting the fact that you have this disease itself.

All through life, we will come to mountain after mountain along our paths. No path is without its challenges and mountains are a part of those challenges. Piles and heaps of ‘stuff’ which we must determine to climb over  or just be content to stay where we are. We know if we climb, it will be steep and tiring. We may be gasping for air. But in the climb, somewhere deep down  inside of you takes over—something you didn’t know you had and you push yourself to keep going. You keep fighting the urge to quit until you finally reach the top. And when you  take that last step, you see why you fought so hard and pushed so long to get there. The view is breathtaking. It is incredible, leaving you speechless—unlike anything you’ve ever experienced.

That is what happens when you climb the mountains and press on until you reach the top—you stand in awe of what you have accomplished, what you never thought you could do. You see what you’re made of and so do those who are watching you.

Your largest mountain may be the disease itself. If so, take one step at a time and push on. Fight for your life, don’t give up, and don’t give in. Your mountain may be taking care of someone you love who has a chronic or terminal disease or illness. Take one moment, one day at a time and take time for you. One of your mountains may be stepping out of your fear zone and meeting some other people who are climbing the PD mountain. Do it. You won’t be climbing alone and when one of you grows weary and wants to quit, the others will help him fight his way to the top, just as Judy and Jeanette did for each other on Mt. Washington.

“…if you have faith the size of a mustard seed, you will say to this mountain, ‘Move from here to there,’ and it will move; and nothing will be impossible for you.”

Start climbing that mountain or make it move out of your way. Nothing is impossible, especially when someone is climbing with you.

Living Life with PD and Hope

I believe everyday can and should be a good day.

As long as I have air to breathe, this I will say:

God has blessed me immeasurably in 48 years

even with a few heartaches, trials, and with PD causing me to ‘shift-down’ a few gears.

My goal is to pursue my purpose in God’s ultimate plan,

and run this race called life, the best I can.

Do you know why? Because there are people watching me,

Questioning “Does Judy really live what she says and does she really believe

that God will not put on her more than she can bear?

How can she smile with Parkinson’s disease and think life is still fair?

I want people around me to know I don’t do life alone…

I have a big God in my corner, who picks me up when I take it on the chin,

And gently reminds me “my child, this is not the end!

I’ve got more good things in store for you …

so get back into life, You live and fight with my perspective ..and you will WIN.”

Judy Hensley

7/26/2010