Most Popular Posts on Parkinson’s Journey

imageThese are the most popular posts on Parkinson’s Journey:

Hundreds of people with Parkinson’s disease tell what their first noticeable symptoms were

People with Parkinson’s were polled as to what their fears are about PD. These are the answers.

What does it take to be an advocate for PD?

A poem on what people with PD live with

Facts about PD infographics

10 things every person with PD wants in life

This Week’s Offering… May 17th, 2015

A Song for Parkinson’s Disease by A Woman with Parkinson’s Disease

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Dora Leonard is a reading teacher in an elementary school in the suburb of Chicago, a wife and mother of 3 children.

Dora was diagnosed with Parkinson’s Disease in December 2013; two months after she turned 50.

Inspired to write a poem in December of 2014, she later asked her 22-year-old college son, Jeremy, to compose the melody for it. They asked a singer from their church to sing the mother-son creation for them and hence, the song I Will Choose was created.

The sales proceeds of this song (available on iTunes) is donated directly to the Michael J. Fox Foundation research for finding a cure. Dora is hoping that by sharing this informationw with others, it will aide in finding a cure for those who live with Parkinsons’s disease.

I Will Choose, by Jeremy Leonard, is sold on iTunes, Amazon and Google Play for 99 cents. You can preview the song by clicking on the link ‘I Will Choose’ above.

This Is Parkinson’s

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my knees are shakin’
it’s not from being nervous
this is parkinson’s

stiff muscles abound
throughout my aching body
this is parkinson’s

lips quiver, teeth click
smile turns into a frown
this is parkinson’s

toes and fingers bend
involuntarily ‘cuz
this is parkinson’s

legs, arms, sides, back and
stomach seize up in great pain
this is parkinson’s

voice falters and fades
i shout and they yell ‘speak up’
this is parkinson’s

i choke on my food
swallowing becomes harder
this is parkinson’s

tripping and falling
walking like a cute penguin
‘cuz of parkinson’s

writing becomes hard
what once was legible is
now parkinson’s scratch

depression and some
forgetfulness issues are
because of it too

the little monster
is to blame
for most all of
that is wrong with me

the good and the bad
and the happy and the sad
a blessing, a curse

badly plugged poop stools
(to make it fit this haiku)…
due to parkinson’s

with one side I am
almost free and with the other
i am bound in chains

to a disease they –
I – we – all call parkinson’s
‘cuz that’s what it is

confusion and a
thing called forgetfulness could
be the… i forget

greater now is the
understanding, compassion,
‘cuz of parkinson’s

confusion, and some
irritability are
blamed on parkinson’s

and why not? if i
must bare this crazy disease
i ask you – why not?

why not blame it for
being snappy and silly
and for all things else

like running into
walls and tripping over chairs
and things of that kind?

why not blame it for
everything in life gone wrong?
seems fair to me, huh?

it took from my life
what wasn’t its to take and…
it just keeps taking

but am i angry?
no – i hold no grudges on
things i cannot see

and though i can see
God in this world around me
i aim no blame at Him

i do not see Him
in this hideous disease
but because of it

i see Him because
of His comfort and His care
and the way He loves

with His strong arms and
His great, matchless mercy and
never ending grace

He is in the all
His faithfulness trustworthy
with hope i endure

it may be ‘cuz of
parkinson’s
that i suffer
or maybe it’s not

but this i do know…
it’s because of God i live
joy unspeakable

GOING FOR THE CHOCOLATE

I am part of an internet support group. The question was posed on the discussion board: “I was wondering if craving sweets is an unusual symptom of Parkinson’s Disease. I am still trying to get acquainted with the ever transforming symptoms of the problem.”

The following replies were posted: “I just got back from the store with a gallon of ice cream, a package of Pepperidge Farm Milano cookies, a chocolate pie and 3 bottles of Magic Shell… so I would have to say yes to your question.”

That reply was followed by another: “Let’s see- 3 bags of chocolate covered raisins, a big dark chocolate bar, chocolate ice cream, and chocolate covered donuts…”

The honest to goodness truth of the matter is, Parkinson’s disease takes a lot from a person. It takes your independence, for one. It takes the spring in your step for another and leaves you with an awkward shuffle instead. It takes the swing in your arm and leaves it motionless. It takes a happy mood and leaves you snappy and swift to bite back. And it takes your sense of smell and leaves you thankful you can no longer smell certain odors. However, while it can and often does take away your sense of taste, that leaves you with a greater sweet tooth.

Now, one can grumble against such losses and complain to those who will stop to listen, but you’ve gotta admit– this is a priceless gift, however expensive this one, wonderful luxury may turn into.

Who could ever imagine such an extraordinary blessing? We don’t need excuses or reasons stretched far and wide, stuffed with lies in order to engage in such a once formidable past time such as sitting by the pool side and eating decadent See’s Candies milk chocolate covered Bordeux’s, sprinkled with chocolate jimmies, washed down smoothly with an iced-cold Starbuck’s chocolate mocha. We need no excuse! We have Parkinson’s disease. And I say, if you’ve got it, flaunt it. Take advantage of each and every blessing it affords you. You’ve gotta start somewhere. Go for the chocolate.

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