I received a question from a reader a while ago and I have been negligent in responding in a timely manner but here goes. She asked…
“My mom gets very frustrated with her purse! Has tried several but has a problem finding and gripping the items to get them out. Is there anyone out there that has found a parkinsons friendly purse?”
Any comments? Inquiring minds want to know…
Comments received thus far in response to this inquiry:
“I understand! First, I use a purse with a crossbody strap so that I can use both hands to get things in and out of my bag. I had my husband attach a key ring strap to my wallet to make it easier to find it and remove it from my purse. I also avoid multiple compartments and I only put the bare necessities in my bag. Eager to hear other ideas! – Sheri C.”
I agree! Crossbody strap is a lifesaver; key ring is very, very helpful and no unnecessary compartments. And only what is really needful. – sherri
I might be asking for trouble for writing this, but here goes…
I have always been a good little patient. I have listened to what my doctors say and done everything by the book, so to speak. But as I get older with this little monster as my constant companion and admittedly becoming more forgetful when it comes to my medications (and other stuff), I am also becoming stronger in myself. I am finding that in order to survive, I am having to be tougher. Stronger. More sure of myself. Who I am. And that means if I take less pills than the doctor prescribes and am still alive, then so be it.
Within 3-4 years of being diagnosed with Parkinson’s disease, I remember taking up to 26+ pills a day, either prescribed and over the counter stuff that would aid in my symptoms due to PD. I took them all. I had complete faith in my neurologist that he knew what was best for me. But, even though I feel it is blasphemy to say this, I’m going to say it/ask it. Did he know best? Does anyone?
I’ve had DBS (Deep Brain Stimulation) and perhaps it is because of this wonder surgery my PD can appear to be ‘invisible‘ . I assure you, for so many reasons, visible or invisible, my fight with PD is real and ongoing.
But, I am taking less and less in the pharmaceutical area of the disease. This past year I began to get sick after taking pills I have taken for a decade. Morning, noon, and night. So I decided to take matters into my own hands and find out which one was the culprit in making me not want to face another day of being sick. I had many to choose from.
After bringing up the subject with my new neurologist, we decided to go with the Amanadine, then the next visit we went with the Azilect, then the Aricept. Then the sickness stopped. When beginning this regimen, I was on doses of pills of many different colors that added up to approximately 16 pills a day. Every three months prior to July, my current nuerologist would make adjustments to my DBS unit so as not to have to up the medications more.
After attending the World Parkinson’s Congress in September, I keep coming back to a comment a doctor made to a woman with Parkinson’s disease who asked, “How do you feel about patients taking the reins on their own care and adjusting their treatment program as they see fit?” The doctor, an MDS (Movement Disorder Specialist), replied, “I don’t have a problem with it as long as you tell me about it after you’ve done it.”
Of course, a patient is limited to what they can do in regards to medications but I am finding fewer pills are working well for now. My doctor is aware of all the medication I am taking and the changes. I wouldn’t do it without his approval. The one thing I do notice – my wearing off is greater. It is not as gradual and if I don’t stay current, I shut down quickly. That is somewhat scary to me.
For now, I am grateful less chemicals are filling up my flesh, because I know, for now, it’s only temporary.
I am one of those people who could easily, depending on the size (of course), wear the shirt that says, “I’m correcting your grammar in my head as you speak.” For as often and as many mistakes as I make in typing, whether it be grammatical or in the area of spelling or punctuation, it still bothers me to see spelling errors in something typed professionally that I know was edited by someone. Or punctuation done improperly. Or ill-grammar usage. Even though it is a pet peeve of mine, I make just as many blunders and they slip by unnoticed. I don’t get frustrated with the writer (myself excluded), just over the mistakes. Maybe it’s part of having OCD (obsessive compulsive days).
Unfortunately, it happens now, more than ever. Take today for example…
I filled out a form today that asked my name, my email, and to check a little box. That’s it. So, I filled out my name, my email, and left the little box unchecked.
37 seconds is what it took to fill out my name, my email, and the ignore that little box.
I used to type at 72 wpm. When I first started having tremors it began to decrease to 65, then 60, and who knows what it is now – probably 10-ish or even less. And it frustrates me because one of the greatest joys in my life is writing.
Writing articles, children’s stories, devotions, inspirational stories, and so much more. But it can be sooooo frustrating because the going can be sooooo slow and full of errors and mistakes and going back and fixing and fixing and fixing. Whatever the reason, I keep doing it because I love it and believe that for some reason that I don’t understand, God wants me to keep doing it. Perhaps it’s because often it is therapy for when I am weary. Perhaps it’s encouragement for others. Perhaps it’s something else.
I don’t struggle with tremors as much after having surgery for DBS (Deep Brain Stimulation), but I do struggle with making my fingers work the way I want them to. They seem to have a mind of their own. Yes, I want to throw the computer out the window sometimes. Writing by hand isn’t an option. No one would be able to read it by the second line.
But… I keep on. I have to keep on. I don’t have an option. Writing is a lifeline. It is a joy. It is a gift God gave to me and since He hasn’t asked for it back, I will keep using it as long as I have breath. Until then, anyone know of a really good program for those who are ‘writing-impaired’? I’m trying to better my typing speed.