Parkinson’s Disease: For Better or Worse

In Black and White
In Black and White

This little monster –
I am going to beat it
I won’t let it control me
while it controls me

Sometimes I think about
the yesterdays
and
the tomorrows
and I want to cry
but I don’t cry
but tonight I cried
because tonight I am reminded
of the yesterdays –
of how life used to be
and look like
and smell like
and taste like
and what it felt like

The yesterdays
that were pain free
and shake free
and drool free
and falling free
and stiffness free
and cramping free
and medication free

Maybe I cried
because I forget how real this monster is
and little things remind me
how it is not so small
and I have to accept –
all over again –
this little monster
is now my constant companion
for better
or for worse

and the better
and the worse
are both life-sustaining
as they teach me
the value of living

the value of
a moment
a word
a smile
tears
and giggles
and
people

And I am finding
in the worst
there is be
something better –
and it is in that better
where I will beat this thing
that strives to beat me

it might control my body
but it will not
control me

Keeping What I’ve Got

  Dear Doctor, I’ve come here today

To get a new body, give my old one away

My feet – they stumble

They trip and I fall

And my brain’s becoming sluggish – but that’s not all.

 

My fingers won’t move the way I move them

My arms and legs they shake

You’d think I’d learn

There are no returns

On the parts of our bodies that break.

 

It’s not getting any easier

Other things are going wrong as I speak

Do you think you could do something, 

Somehow, anything

Your expertise is what I now seek.

 

I’ve put in for a new toe or two

The ones I have are not working well

They hurt, they bend

It’s becoming a trend

And hasn’t been too terribly swell.

 

Yet, doctor, you know – I’ve been thinking

About keeping at least my two eyes

They’ve helped me to see 

Incredible things

Like rainbows, the sunset  and  sunrise.

 

And you know – about my hands,

They’ve made so many things

And I’ll keep my voice

(I don’t have a choice),

My grandkids like when their Grammy sings.

 

And then, there are my legs,

They really have been good to me

They carried me here,

They’ve walked me to there

They’ve supported me constantly.

 

And let me not forget my heart

That has beat within every day 

I’ll keep that too

(it’s the least I can do),

For it’s guided me when along life’s way.

.

 

So I guess I’ve changed my mind

And I’ll keep all that God’s given me

I’ll enjoy what I’ve got,

‘Cuz I’ve got quite a lot,

I’m alive, been forgiven, and set free.

 

 

 

 

 

 

 

 

 

 

 

Doing Drugs

 There’s a pill for my shaking

That I should be taking

And a pill to help that pill go down.

 

There’s a pill for my legs

That I can’t have with eggs

But I still do if no one’s around.

***

There’s a pill for the pain

It works in sunshine but not rain

And a pill for the lack of a good memory.

 

There’s a pill for the down days

that I must take for always

or I’ll seem to be somebody else – not me.

***

There’s a vitamin I take

That aides the pill that helps me not shake

And another that helps all around.

 

I counted my pill stash

Something I can’t do with my cash

As the cash is spent on all these pills that abound.

***
Azilect, Vitamin E, Vitamin D,

Requip, Carbadopa, Lexapro, they be

All these into my mouth they must go.

 

Add to that Sinemet and Artane,

Don’t forget the pill that helps with the  pain

‘Cause I follow doctor’s orders, it’s so.

***

There’s plenty more

At the local drugstore

It’s convenient to just make a call.

 

I ask for a refill

Of this pill and that pill

They’ll be happy to give you them all.

***
Just name your price

They’ll treat you real nice

And tell you what you don’t want to hear

 

“That’ll be three hundred dollars, please”

“But I have no insurance , you see”

And they keep your stash and offer an “Oh,dear.”

***

 

You wonder if it matters if you skip a pill

After all, you’ve certainly had your fill

But you come up with nothing but… empty.

 

You’re a young person still

With a disease against your will

Trying to make the best of a travesty.

 

***

So pay the fee to pop the whites and the reds

And just before climbing up and snuggling into bed

Don’t forget to take the purple and orange one, too.

 

For when you awake the next morning

And you feel like you are soaring

Just remember, those pills are helping you be you.

Related Posts Plugin for WordPress, Blogger...