Blogging with A Purpose

Do you ever wonder what happens to the bloggers who started strong, persevered for a time and then just disappeared off the face of blogosphere?
I was updating some information on my blogs the other day and was checking the list of some bloggers I once followed. When I went to their sites, I noticed their last posts were all over three years ago – or longer.

What happens to people who just disappear from the blogging world? Do they lose their steam? Their desire to write? Move on to other things, other fads? Are they now “Vlogging”, as seems to be the next phase of the blogging world? And if they’ve moved on to other things, why do they leave their site open?

I understand the part where you lose your steam. Some days are hard trying to keep up with a blog. I try to keep up with two and where it used to not be so difficult to do, I now find my self struggling to do it, as it is much more difficult to type. Yet, my desire is still there. I haven’t moved on to other things, other fads and have even contemplated Vlogging at times, becoming the next Casey Neistat of the Parkinson’s world. But I have to find myself some really cool sunglasses first and a really, really, really humongous loyal following. I only need like 3 million more people. That’s all.

I first started blogging about Parkinson’s disease the year I was officially diagnosed. It was sometime in 2004. A lot has happened since then but the aim, my focus, my purpose or mission as I see it, was to write about my journey along the way so that others with PD might be encouraged and know they are not alone in this battle. My focus or aim was never to see how many followers I might have tag along or if I could make my blog a money machine. It still isn’t. My goal remains the same: to encourage others in their journey and to let them know they are not traveling this journey of PD alone.

When I first started out, my blog name, Parkinson’s Journey, was easy to claim, as there were literally a handful of blogs about PD. The Michael J Fox blog hadn’t even been invented yet, nor had the blogs for American Parkinson’s Disease Assn, or many of the top PD websites that have been on the internet for some time.

It seems blogs for PD or Facebook groups on PD have swelled into existence in just the last few years, as I am sure is true for other diseases, causes, etc. Everything has swelled on the internet! In fact, the name of my blog, Parkinson’s Journey, has swelled as well, taking on several different varieties using Parkinson’s and Journey in their name.

And so I glance through Facebook and Google (or wherever) to see if there are new blogs or websites on PD that I might add to my list of references for those seeking information on PD, sometimes I find an oldie that is now laying dormant or I find 25 new ones. And so I clean up my list and am thankful for the changes. I can’t be everything to everyone, nor can five or six of us. I appreciate that there are others who are sharing their stories with others. The patients, the caregivers, the doctors and more. We all have a story to share/tell. Where others may be able to reach, others may not and that is why, as many who can tell their stories need to.

It sends the message that others who are fighting this disease are important and you are willing to share your journey if it means making their journey just a little bit easier.

That’s my purpose. That you, as a co-journeyer, know that we are on this journey together and you are not alone.

Eating This or That

You can’t eat this, and you shouldn’t eat that –
there are a thousand different opinions you see,
of what to eat and what not to drink
from the medical forces to those with PD.

They tell you to stay away from milk –
it’s no good for you, you see –
even though you’re supposed to be upping
your intake of good-for-you vitamin D.

So – no more dipping Oreos.
no more ice cream or chocolate chip milkshakes
Only cereal that’s dry because you can’t have milk
on those Cheerios nor on those corn flakes.

And cereal, did you know, specifically Honeynut Cheerios
has four different types of sugar hiding inside its bag?
Yep – brown sugar, sugar, corn syrup, and caramel –
enough to send up several red flags.

Could the doctors be in this together?
Telling us what we can and what we cannot eat?
Why – they’re giving and getting reports of studies conducted
As to whether we should even meat.

Some say go ahead and indulge
Others say moderation and good choices are best.
While others will tell you to double up on kale,
Fresh broccoli, spinach and the rest.

So you try to choose something tasty,
Put it on your plate and pretend to enjoy chowing down.
Still, there’s only so much you can take,
as you partake of it while wearing a frown.

Simply named, I call it the ” PD Diet” –
guaranteed to help you maybe get a bit healthier .
While one doc says how great it will work,
Another cannot be one percent sure.

Dr. So and So says to leave the milk alone,
“It could cause pneumonia, down in your lungs, you see.”
And Dr. What’s His Name says cut out all bread
While Dr. Who’s It says regarding that bread,
“Go ahead and have two or three!”

Some doctors believe the consumption of protein
is okay if eaten at the right time of day –
not before a meal and not after as well
I say just forget it and have an avocado purée.

They’ll tell you to eat the dark chicken meat –
it’s easier to swallow as the stringy white kind.
Now, since I don’t care for dark, I guess I’ll skip both
and see if there might be something else I can find.

No added sugars in this PD diet as well
So I guess cookies are out of the question, too.
Cakes and pies are off the board
Anything pastry, flaky, and yummy just won’t do.

Beans, beans and more magical beans
Some more green stuff mixed in there too
Chew well, eat slowly, smaller bites will help
Lots of water will help wash down the goo.

This PD diet is just a tad bit facetious,
but tell me – what’s a body to do?
When I have one doctor tell me one thing
while another says differently,
It gets me craving a slice of cake or two!