I Cannot Tell A Lie

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I don’t know about you, but I find it difficult to lie. For me, I consider that a good thing. Now, I’m not saying I’ve never lied. If we’re all honest, we’ve all lied. (No pun intended.) However, consider what you are about to read and then ask yourself if you can’t lie or if… you can’t lie. Read on and you’ll understand.

In the early 1900’s, Carl Camp wrote something to the effect that Parkinson’s patients were those who worked hard and who resisted the influence of tobacco and alcohol, among ‘other respectable traits’. Because of these findings, research has been conducted to prove whether or not this is actually an accurate account. The association of PD with personality or behavioral traits have shown over again that PD patients have traits such as being productive, inflexible and passionate about whatever they do. And…they’ve also been described as being honest.

Honest how? They cannot tell a lie. Does that mean that Parkinson’s tends to target honest people? Possibly. It’s been said that certain chemical changes in the brain during the course of the disease may have something to do with it. Another study found that the change in patients was due to the disease rather than aging, and that there may be a possibility that such personality traits are common with PD brain damage.

Does that mean that patients don’t choose to tell a lie but actually find it difficult to lie, due to something beyond their control, such as causes due to change in specific areas of the brain?

While this news may be considered a good benefit of having Parkinson’s disease, I would hope that I would be making the choice to not lie because it’s the right thing to do and not because I have PD. However, I’ll take what I can get and if PD is responsible for upstanding patients, then I’m thankful for that one good thing.

And that’s the truth.

Good News!

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FDA Approves RYTARY for Treatment of Parkinson’s Disease

– Jan 08 2015

The Parkinson’s Disease Foundation (PDF) alerts the community that RYTARYTM, an extended release formulation of carbidopa/levodopa, has been approved by the US Food and Drug Administration (FDA) for the treatment of Parkinson’s disease. The approval was announced today by the drug’s manufacturer, Impax Pharmaceuticals.

Among the medications available to treat Parkinson’s disease, carbidopa/levodopa, often taken as Sinemet(R), remains the gold-standard for easing motor symptoms. But as Parkinson’s disease advances, the drug becomes effective for shorter time periods. This often makes it necessary for people with Parkinson’s disease to take the carbidopa/levodopa four or more times a day to control symptoms.

Even then, people with PD taking the drug experience drops in their levels of levodopa, causing a worsening of motor symptoms as the drug “wears off.”

In recent years, drug manufacturers have tried to develop a formulation of carbidopa/levodopa that would release more slowly over time, and keep levodopa levels more even, thus reducing “off times” for people with Parkinson’s disease. The manufacturer of RYTARYTM states that the drug is designed to reduce off times in people with Parkinson’s disease.

“A new drug for PD is always a cause for celebration. RYTARYTM is formulated to kick in rapidly, then maintain blood levels longer than immediate-release carbidopa/levodopa,” says Kathleen M. Shannon, M.D., Chair of PDF’s Medical Policy Committee and Professor of Neurology at the PDF Research Center at Rush University Medical Center. “This makes it potentially useful for people with Parkinson’s who are having wearing off of drug benefit between doses.”

The manufacturer has announced its expectation for the drug to be available in February 2015 in four strengths. The dose of RYTARYTM must be adjusted carefully as there is not a simple 1:1 relationship between the dose of carbidopa/levodopa and that of RYTARYTM. People with Parkinson’s disease who are interested in RYTARYTM are advised to discuss with their doctors the potential risks and benefits of the drug in comparison with other PD drugs.

PDF welcomes the addition of this new tool for clinicians and people with Parkinson’s disease. For additional information about medications for Parkinson’s disease, please contact PDF’s HelpLine at (800) 457-6676 or info@pdf.org or use our free resources below.

Download Fact Sheet: Understand PD Medications

View PD ExpertBriefing: Medication Side Effects

View PD ExpertBriefing: Managing the Motor Symptoms of PD

Friday’s Funnies, Facts, and other Frivolous Findings

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Okay, before watching all the holiday TV shows and movies so you  can hang Christmas lights, did you know that the best predictor of weight regain is frequent television viewing and that more than 500,000 Americans are injured and 300 die each year while using ladders? Keep in mind the 4-and-1 rule; for every 4 feet the ladder rises up the wall, the base of the ladder should extend 1 foot from the wall.  Be careful.

PD patients: did you note the cognitive function and depression and muscle protein synthesis aspects of Vitamin E? Ask your doctor if supplements might be beneficial to your drug therapy.

 

For all those people who know there’s something wrong with their cars but have no clue what the problem is or how much it’ll cost to fix, here’s a chart from a mechanic’s garage, along with prices:
Ping, Click, Ping-   $10
Click, Whir, Click – $30
Clunk, Whir, Lunk -$50
Thud, Clunk, Thud –  $100
Clang, Thud, Clang – $200
I Can’t Describe It –  $500

When Restlessness Keeps You Up at Night

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When the Little Monster (aka Parkinson’s disease) began making its debut into my life in undeniable ways, one of the symptoms was RLS, otherwise known as Restless Leg Syndrome. RLS is a condition that can manifest itself in others who don’t necessarily have Parkinson’s and yet, it doesn’t matter whether you have PD and RLS together or not – either way it is quite annoying.

RLS makes your legs feel tingly and jumpy – restless, like its name, to say the least. You feel like your nerves are going to jump right out of your lower limbs and I have found myself in the wee hours of the morning, walking in circles to get it to stop.

RLS has lead me to find comfort in Psalm 37, where David talks about being patient and trusting the Lord. When we grow restless and are not necessarily putting our trust in God, we tend to take matters into our own hands and try to fix what is wrong in our lives by ourselves. But David found a better way. He trusted God and in doing so, he found rest – the opposite of being restless.

David had learned to dwell where he was and enjoy God in that place. He was able to delight in the Lord because his focus was vertical, not horizontal. It took patience – being still and waiting on God. Virtues that are quite opposite from that of being restless.

The remedy from restlessness in the spiritual realm is trusting. Trusting in a God who promises to give us the desires of our heart when we find delight in Him. When God makes a promise, such as providing for you, protecting you, forgiving you, loving you, or maybe giving you the desires of your heart, you can trust Him and not spend the night hours pacing the floor in anxiousness and restlessness.

Are you restless about something and haven’t trusted God to come through? Give it over to Him now and claim Psalm 37 and then… wait patiently for Him to do it.

Trust in the Lord and do good; dwell in the land and enjoy safe pasture. Delight yourself in the Lord and he will give you the desires of your heart. Commit your way to the Lord; trust in him and he will do this: He will make your righteousness shine like the dawn, the justice of your cause like the noonday sun. Be still before the Lord and wait patiently for him. Psalm 37:3-7a NIV

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