411 About Me

Living to write. Writing to live. Crazy. Addicted to most chocolate. Okay. All chocolate. Photographer. Lover of Boo and Buddy. Obsessive Pinner.

Misdiagnosed at the age of 32 with Lupus (just goes to prove how these two diseases [and many others] mimic each other), I joined forces with my current neurologist of over nine years (2004). The diagnosis was corrected to Young Onset Parkinson’s disease. You can read parts of my story here at Parkinson’s Journey.

This blog does follow my life, to a degree, but mainly it is a collection of my thoughts, on the good days and bad. It is a collection from my diagnosis with PD to the current day. It is a collection of what I’ve learned and what I am learning (If I wrote what I still need to learn, I’d have to start another blog… .).

‘They’ say (and I’ve never quite figured out who ‘they’ is) that concocting a mission statement is a good way to maintain a focus in your life endeavors. Parkinson’s Journey has such a statement:

“…to encourage and offer hope to others
walking their path with Parkinson’s disease
and to assure them,
they are not alone.”

Encouragement and hope is what my heart’s desire is for Parkinson’s Journey, because Parkinson’s Journey is me, ‘walking’ alongside and reminidng you… you are not alone.

Journeying with you,

Sherri Woodbridge

Comments

  1. Christi says

    Hey!
    So glad i found your site. My momma was diagnosed with Parkinsons a little less than 10 years ago ( she is now 71). Thank God that she is in overall good health except for the Parkinsons. The shaking gets really bad at times, as does the rigidity. It seems like the neurologist just gives her something to hush her up. She used to take Stalevo but her Medicare stopped paying for it, so now she is on Carbalevo i think it is. To me, it doesnt help much, it seems like its worse at times..Do you have any suggestions for this?

    • says

      Hi Christi –
      I wish I could do more, say more – My suggestion is for her and you, as a person who, it sounds like, is involved in her care is to seek out a different neurologist. She needs to get care from someone who is listening and takes her seriously and that she is happy with. Is Medicare covering her current medication? The Carbidopa/Levodopa is one of the better drugs for PD and she may just need the prescription adjusted. There are so many factors that play into the treatment, it’s hard to say. She might be wearing off of the medication too early, in which the right neurologist will be able to help in making a difference in how she lives life now. I would suggest trying to find her a good movement disorder specialist. What are does she live in? I might be able to get you the name of a good one. I do hope that was some help. Hang in there. She’s lucky to have you on her side of this battle.

  2. Ram Meyyappan says

    Hello,

    I came across your site doing a google search and it seems to be a useful resource for those with parkinson’s. I was wondering if I can contribute to your blog by writing an article on applying for disability benefits with parkinson’s?

    I am contacting your from Social Security Disability Help, an organization that works to promote disability awareness and help individuals navigate the Social Security Disability application process.

    Please send me an email at ram@ssd-help.org if this is something that you are interested in.

    Thank you for your time and consideration,

    Ram Meyyappan
    Social Security Disability Help

    • says

      Hi Sally –
      I’m sending my response through the comments and to the email that came through in hopes of assuring you receive it. I was put on Lexapro and we originally started at 5mg about four years ago. I am now up to 20mg. It takes the edge off and helps me feel much better mentally and emotionally. I hope that helps. If you have any other questions, concerns, please don’t hesitate to ask. Let me know how it goes…

  3. says

    Sherri, Just stumbled on your PD blog. Since I was diagnosed by a neurologist with PD in late 2009 (had some balance issues then), I have gotten a bit worse. One of the things I’ve noticed is my computer typing–I now have to carefully go over what I just typed for I’m making NUMEROUS typos–guess the fingers don’t work so well anymore. What a nuisance!

    I’m planning to give up the guiding at end of this year, and am giving up a long-time hobby–target shooting with black powder Civil War-style guns–I’m a member of the North-South Skirmish Assn.

    • says

      Thanks,Ken, for leaving a comment. I can relate to the finger frustration. My delete button is literally worn out. The guide job sounds really interesting. You must be a history buff? Why are you giving up the target shooting? Just don’t take anyone with you if you’re shaking really bad… :) Just kidding. Are you sure you have to give it up?

      • says

        Sherri, Sorry about the delay in replying. I’ve since sold off all my CW skirmishing guns and supplies (didn’t want my wife, who knows virtually nothing about them, to be stuck with them after I pass). Still continuing my membership and friendships, tho’. I’m 7o now, have been swallowing lots of antioxidants and don’t have the usual PD tremors yet (thank goodness, tho’ the other symptoms are there and worsening: loss of balance, drooling, smaller writing and trouble signing name, etc.).

        Reason I stopped shooting had as much to do with cataract operations I had on my eyes in Jan and Feb, 2012, and great sensitivity to bright light thereafter. Came to find out that goes with PD, too, so I got a double whammy!

        Just last nite I asked my webmaster to alter my website to say I am now out of business and referring any future requests to others.

        Keep up the good work! KenH

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