About Parkinson’s Journey…

imageWelcome to Parkinson’s Journey!!!

Here’s a little bit ‘about me’…

I was diagnosed with Young Onset Parkinson’s disease at the age of 44. Symptoms having started long before that, I battled through many tests, lab work-ups, procedures and the like to figure out what was going on. When the diagnosis finally came, I was relieved. Although I had a name to the face of this little monster, it was a time of uncertainty. I was scared, angry – I was grieving for what I had loss and what I could lose.

One day however, God reminded me that He’s in charge and He was in the muck with me and it was going to be okay. He had my back and what it ultimately came to is whether I trusted Him or not.

So, on that stormy, wintery day, I decided to let Him take me through these unchartered waters for I had learned through the years that He is faithful and full of grace.

From my personal experiences with PD, these are my stories, my journey. Stories of my own walk, some of others I have met along the way. Stories shared with you, with the purpose of (hopefully) being an encouragement and to bring hope to those walking a similar path.

Be assured… you are not alone. We are in this together.

Sherri Woodbridge – Author and founder of Parkinson’s Journey, since 2004; weekly columnist at Parkinson’s News Today; member of Sunovion Pharmaceutical Advisory Council for Parkinson’s disease.

8 thoughts on “About Parkinson’s Journey…

  1. Dear Sherri,  

    I hope this email finds you well. 

    I wanted to reach to you about my extremely inspiring mother, Sue Wylie, and her play Kinetics – which I hope you may be able to help raise awareness of.

    Six years ago my mother was diagnosed with early onset Parkinson’s – although it was obviously a challenging time in her life and continues to bring with it its difficulties, she has turned her unique experiences and story into a play which offers hope and inspiration – along with real insight as to what it is like living with a chronic condition. 

    Last year the play toured across the South-West of England to great critical acclaim with the support of Arts Council funding. The one recurring comment made was that the play needed to be seen by a wider audience, with people from across the UK and US desperate to see it. 

    We are therefore launching a Kickstarter campaign to help raise the necessary finance to turn the play into a short film. If there was any possibility of you spreading the awareness of her project through your blog – I would be so so grateful.


    Thank you for your help in advance. 

    Kind regards, 

  2. Hi Sherri, I promise this is worth your while, so bear with me!

    My name is Sara Kim, and I do social media and public outreach for Tom House, PhD, and the National Pitching Association. Tom is a former major league pitcher and is now a world renowned throwing coach, currently training football stars Tom Brady, Matt Ryan, Drew Brees, along with over 20 major league starting pitchers and countless college and amateur athletes. More importantly, he is the closest thing I have to a father, and is very dear to me. He was diagnosed with Parkinson’s almost 10 years ago, and has recently begun a new venture that has less to do with baseball or football and more to do with Parkinson’s Disease.

    Tom has created a protocol, workout, lifestyle program that uses neurofeedback combined with exercise for those affected by Parkinson’s disease, as he currently is now. Based on his own personal success with this experience he has decided to roll it out to the public.

    This protocol works in conjunction with a mobile app and a product called FocusBand, a wearable device that measures brain frequency. With this device the user is able to actually quantify and measure the activity within his brain during exercise. This allows the user to “train” the brain and, for Parkinson’s patients, the expectation is that is will maximize the use of whatever dopamine in left in the brain prolong the effects of oral dopamine, giving Parkinson’s sufferers more “on time.”

    Although this has the potential to be a huge medical breakthrough, clinical trials are not reasonable nor feasible at this stage. To overcome this, we coined the process “crowd trialing,” which is basically the collection of data through beta testers of our product – users get the product and protocol and begin to use the program, and we collect live data from their devices. Once we have the data, we can provide the program to larger groups of Parkinson’s patients.

    The program has been named Just Do Something Every Day. We’re going forward with an Indiegogo campaign, and it launches on this Tuesday, May 23rd. If you believe there would be interest for a story on the program and/or the concept of crowd trialing, please let me know. I’ll be happy to set up an interview with Tom.

    We think this could help a lot of people, because it’s already begun to help him. Thanks for taking the time to read this, and I hope to hear from you soon

    Sara Kim

  3. Hi Sherri,

    Congratulations! Parkinson’s Journey is nominated for Healthline’s Annual Best Health Blog Contest! Check it out here: http://www.healthline.com/health/best-health-blogs-contest

    Every year we take a look at the top health blogs to honor & recognize them. This year things may look a little different, as we’ve updated the contest and taken strides to make sure everything runs smoothly & everyone has a good time voting for their favorites!

    The contest has a nomination period, starting now, until November 21st. After that, you can vote once per day for your favorite blog up until December 12th when the winner will be announced.

    Once voting begins, we’ll send you a reminder email so you can share with your followers. Remember, the blog with the most votes will receive a $1000 cash prize!

    Let me know if you have any questions.

    Congrats and good luck!

    Maegan Jones | Content Coordinator
    Your most trusted ally in pursuit of health and well-being

  4. Hi Sherri,

    I love your Blog. It is really more like a website with so much good information. I do not have Parkinson’s. I have another neuro-degenerative condition called Spinocerebellar Ataxia. I call it a cousin to Parkinson’s. A different part of the brain is affected. The Cerebellum- which controls balance, speech, coordination, etc. I go to a wonderful Parkinson Network Group near me. Many of their guest speakers are professionals that deal with Movement Disorders. I want to start a blog called ‘Balancing Life with a Movement Disorder’. My condition is rare, so I would like to reach a broader audience.
    As a seasoned blogger what are some tips or advice you could give me as a newbe. It appears you had someone design your site. I can’t spend a lot, but I want an attractive and appealing.
    What do you recommend. What do you think is a fair price to pay? I appreciate any advice you can give me. I put my faith in God as well. He is my strength. How often do you post? How many hours a week do you spend working or posting on your site? Thanks in advance for any tips of advice you can give me.

    God Bless,

    1. Hi Joanne —

      Thanks for the kind words. My husband takes care of my website mostly (the technical stuff) and I just do the posts, add the pics, etc. When I first started blogging, I used Blogger/Blogspot, a blogging tool for bloggers. I loved it. It’s greatly improved and I think you could do a very nice blog with using that and it’s easy to use and has many options and different ways you can change things around. If my husband didn’t help, I’d probably still use that and I just asked him whatw he’d suggest and he said Blogspot. And it’s free Yea!!!.

      Right now I use WordPress. Using the basic template is free but for me, it’s not as user friendly (unless you’re into website stuff and know the ‘language’ – I’m not!) I’d check out blogger.com.

      I would explore some websites you like becasuse of the ‘look’ and ask yourself why they appeal to you – are they colorful? easy to read? simple? Use this info to set up what you’d like.

      I’d just jump in with a welcome/intro post after you have your site set up the way you want it. You can change it as you go quite easily. I posted 2-3 times a week and now am sporadic, sorry to say. I was doing well but then started watching my grandson every day and didn’t have the time to write I would have liked for my site. I don’t watch him as often now and hope to get back to it on a more regular basis. ‘They’ say (the blogging gurus) you should post on a regular basis, the same day(s) of the week so your audience grows and is not disappointed when nothing comes through. I know a few other bloggers that started out doing 2-3 times a week and have cut back to 1 day a week without losing their readers. But, they have a big following. I haven’t lost any readers in my flakiness, but I could if I don’t get back to where I should be (and would like to be). I spend (in a good week) about 8-12 hours+ on my blog a week – collecting data, reading articles, writing, etc. I love to do it. It’s good therapy.

      Let me know how it goes. Maybe we can guest blog for each other!
      (sorry this was so late in answering)

  5. Hi Sherri,

    I am happy to inform you that your blog has made Healthline’s list of the Best Parkinson’s Blogs of 2015! Healthline’s editors carefully selected each winner based on quality, frequency of updates and contribution to the community. You can see the full list here: http://www.healthline.com/health-slideshow/best-parkinsons-blogs

    We created a badge to help you publicize your achievement: http://www.healthline.com/health/parkinsons/best-blogs-badge-2015 We encourage you to embed this badge on your site and share your status with your followers.

    Thank you again for providing a great resource to the Parkinson’s community! I’m happy to answer any questions you may have.



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