The following is an extensive list of currently active (unless otherwise noted) blogs pertaining to Parkinson’s disease. It is intended to provide information for those seeking encouragement, inspiration, information, support and more on their journey with PD and are written by those who understand and are walking the same path. It has been compiled by Sherri Woodbridge. Please do not copy or reproduce without permission.
—If you know of a blog or author of a blog about PD (caregiving, personal journey with PD, etc) that is not listed below and would like to be a part of this network, please feel free to let me know at firstname.lastname@example.org.
BLOGS ON PARKINSON’S DISEASE
Currently active as of DECEMBER 2016
- AGING AND PARKINSON’S AND ME
A diagnosis with Parkinson’s Disease in September 2009 at age 80 gave life a new focus and challenge for John Schappi. Finding ways to meet this challenge helped make 2010 the best year of his life. The hope for this blog is that it will be a place where he can connect with others who also are dealing with aging and its afflictions and attractions so that together you can share your “experiences, strengths and hopes.”
- APDA MA BLOG
This blog is published by the APDA (American Parkinson’s Disease Foundation) Massachusetts Chapter. It is meant to be a series of articles on items of interest to the PD community and posts and do not necessarily reflect the official position of the APDA . Some really good posts.
- A SOFT VOICE IN A NOISY WORLD
Making the best of a life with PD
- BIBMOMMA’S BLOG
Reflections of an early onset Parkinson’s patient.
- BLOGGING WITH PARKINSON’S
A personal perspective on Young Onset Parkinson’s disease, written by Zalamanda who lives in Hampshire, England. She is a mother, a writer, a scientist and an artist.
In the autumn of 2009, she was diagnosed with Young Onset Parkinson’s Disease. Almost a year later, she started this blog.
Although this blog appears to be inactive (as of 4/2014), it still hast seven years of great posts of a Midwestern retiree with Parkinson’s disease.
- CHRONICLES OF A DYSTONIA MUSE
The decidedly non-frivolous musings of a battle-clever Dystonia damsel – less in distress – seeking a bit of comic relief as she airs her “neurological dirty laundry”.
- COFFEE WITH POKIE
“Today With PokieToo and Parkinson’s and Acute RA Disease”: A daily journal of my fighting not only Parkinson’s Disease but Acute Rheumatoid Arthritis with My Lord on one side and Patientslikeme.com on the other….with a sense of fun and friendship all around.
- DAY BY DAY WITH A MOVEMENT DISORDER
Diagnosed with Parkinson’s Disease and Peripheral Neuropathy in 2006, her symptoms seemed to take a turn in a different direction in late 2007. The current diagnosis is ESSENTIAL MYOCLONUS. Share her journey – coping with the testing, the medicines, nutrition, digestion problems, exercise, the emotions, uncertain diagnoses and no telling what else!
An ordinary girl, blessed with an extraordinary life while living with Young Onset Parkinson’s disease.
- LIM YOGA BLOG
Yoga for Parkinson’s disease and Movement Disorders
- OFF AND ON: THE ALASKA PARKINSON’S RAG
Peter Dunlap-Shohl authors this blog from Alaska drawing from personal experience and using wit, humor and comics. Great information.
- OUR PARKINSON’S PLACE
- PARKINSON’S DISEASE AND ME. One blogger’s personal experience with PD
- PARKINSON’S HUMOR
Bev Ribaudo, aka ‘Yuma Bev’, shares her optimistic attitude about life with PD, regardless of what’s happening, good or bad. You can also read about Bev’s DBS experience here.
- PARKINSON’S JOURNEY
Offers encouragement, inspiration, and support to people with PD and their caregivers. By a person with PD. Good resources.
- PD PLAN FOR LIFE – Living well with Parkinson’s Disease
Hope springs from refusing to give up. “Once you choose hope, anything is possible,” said the late Christopher Reeve. Instead of allowing Parkinson’s to limit and define her, Sheryl has found new purpose for her life, done things she never dreamed she’d do, and made friends she would not otherwise have met.
Meet Sheryl and her friend Jean Burns as they share their challenges, triumphs, humorous perspective, and coping strategies to empower others to live well with Parkinson’s.
- ROBIN MICHELE LEVY
A Canadian visual artist, radio broadcaster, and writer with PD.
- SHAKE, RATTLE AND ROLL
An insider’s view of Parkinson’s Disease and DBS
- SHAKY PAWS GRAMPA
“Shaky Paws Grampa” is Kirk Hall, author of Carson And His Shaky Paws Grampa and patient perspective Parkinson’s advocate. His personal experience as a PWP includes support group meetings, two visits to the National Institute of Health’s National Institute of Neurological Disease & Stroke to participate in clinical research studies, participation in workshops at the Southeast Parkinson’s Conference, participation in clinical research studies, and joint presentations with movement disorder specialists to support groups sponsored by the Parkinson Association of the Rockies (PAR) and University of Colorado Hospital. Kirk has been a guest speaker at the Muhammad Ali Parkinson Center in Phoenix and other events in the Denver area. He and his wife of 43 years, Linda, are PDF Clinical Research Advocates.
- SITTING COMFORTABLY?
Andy Daly tries to avoid the subject of life with Parkinson’s disease by trying to reflect on life without Parkinson’s Disease.
- SMALL GIRL WITH PARKINSON’S DISEASE
- SPILLIN’ THE BEER WITH BRIAN
One man’s personal experience living with PD
- STUDIO FOXHOVEN
Terri Reinhart, a former kindergarten teacher of 18 years, now enjoys spending time making brooms, felting, knitting, bookbinding, painting, and filling up the house with various craft supplies. She is probably the only woman who has ever asked her husband for 50 pounds of broomcorn for her birthday. She also enjoys writing because, as she says, “It helps me to process all the crazy wonderful things in life without screaming or hitting anything.” Join her on her PD path as she enajoys life to the fullest.
- THE OTHER SHOE HAS ALREADY FALLEN – a teacher shares his experience with PD
- THE PD GARDENER
Stan has Parkinson’s Disease (PD) and is a gardener, however he claims he is not an expert in neither. This blog is a little bit about PD and a little bit about gardening. Stan lives in Ottawa, Ontario, Canada. Allison is a “thirty-something girl” who has been a medical anomaly since age 13. She wanted to help people… to really make a difference. So she went to graduate school to become a Psychotherapist and during her second year, she was diagnosed with Parkinson’s disease. The only thing that made sense to her was to give back. She launched a program called “Parkinson’s in Balance” in 2010 with the goal to help her community. Her program offers fitness classes, support groups and social events. You can also follow her advocacy work through her blog. “Don’t underestimate the power of sharing what you do,” she says, as “you might just give inspiration to someone in need of a boost.”
- WEARING OFF
Written by four authors, WearingOff has helpful information about adjusting to life with Parkinson’s Disease.
A yogini with a PhD and a passion to help people live well with Parkinson’s disease, Her grandfather diagnosed with PD, Kaitlyn made it her passion to improve the daily lives of people affected by neurological disorders. With a PhD in Health & Exercise Sciences (specifically, daily physical function in persons with Parkinson’s), she is a Kripalu yoga instructor (Trinity Yoga Centre, Kelowna BC) and value yoga for its ability to improve physical and mental well-being, stress, energy and mood… in ALL people! Here you’ll find Parkinson’s disease information, yoga inspirations and some of her daily adventures.
- YOUNG AND SHAKY
Andrew was diagnosed with Young Onset Parkinson’s Disease at 35 years old. Since then his disease has progressed rapidly, and he has been forced to make major changes to he and his family’s lives as a result. He is fortunate to be supported by a group of amazing mates and their families, his own extended family and of course his wonderful, patient, loving, supportive, funny, caring and beautiful wife Lynn and their two awesome kids.