Thank you to Melissa Barry, PDF staff, for this update: We have just learned that the widely-watched clinical trial of a potential new gene therapy treatment for Parkinson’s disease (PD) has shown no evidence that the treatment is effective. Ceregene Inc., the company that was testing the efficacy of CERE-120, reported today that a Phase ... ...
Thank you Melissa Barry for this information received Dec., 2008. PDF Update on Neupro® Recall: FDA Issues Complete Response Letter – Dec 19 2008 Earlier this year, the Parkinson’s Disease Foundation (PDF), issued a statement regarding UCB Inc.’s recall of Neupro® (rotigotine transdermal system), a treatment formerly used to ease the symptoms of Parkinson’s disease ... ...
Alas, Judy’s come up with another great and funny idea. She wonders if we should take on aliases for our blog. Hmmm… “As you know,” she states quite matter-of-factly, “many writers pen their stories under a pen name or alias.. Since many of our blog readers have followed us on this journey for awhile, they ... ...
Best Day Fishing Yet I love to fish. You see, I could do this all the time in spring, summer or fall. My husband, Armand, and I get on our pontoon and go. On this day we got a late start. It’s 1:30pm. We go to our “lucky spot” and put the polls in. Now ... ...
We were having a birthday party for my youngest daughter recently. We set up the Wii games for all the little ones (ok – and the big ones too). I had to type in her name for one of the games and the alphabet was up on the screen to choose letters one at a ... ...
Changing Lightbulbs When a person has PD, how many people does it take to change a light bulb? – To change the light bulb in my bedroom, you have to stand on the bed. My sister-in-law is too short; my mother is too old and unsteady. Sooo, that left me. I used the ladder to ... ...
When my PD Symptoms were brand new, I went to a Neuro who I will call Dr. Quack. He really did not seem to know what to do. He did order a bunch of tests including a 24 hour EKG which did not show anything at all, something went wrong with the machine. He never ... ...
Inspired and dedicated to Judy Hensley I wish I could form words without someone thinking I was drunk like saying, “Yes I do think” instead of “Yes I did thunk”. I wish I could carry a glass with cold ice without shaking and rattling so loud it sounded like a martini I was making. I ... ...
FIRST ANNUAL PARKINSON’S JOURNEY FUNNIEST PD STORIES CONTEST GRAND PRIZE: DR. QUACK’S DIAGNOSIS CONTRIBUTOR: ‘BILLYSEA’ PRIZE: PJ T-SHIRT (WILL ARRIVE IN JANUARY WITH NEW LOGO DESIGN!) WITH 1OO QUESTIONS AND ANSWERS ABOUT PD BOOK FIRST PLACE: HOW MANY TO CHANGE A LIGHTBULB CONTRIBUTOR: ‘CHERIE’ PRIZE: PJ T-SHIRT WILL ARRIVE IN JANUARY WITH NEW LOGO DESIGN!) ... ...
What is it about us humans that we never seem content? We search for a peace of our soul/being. Is it in being normal? Then why when we are ‘normal’ (all relative, you know) do we wish we were different? Ah, we want to stand out…to be special. Is that it? Everyone now days wants ... ...
Leave comments in the box below post (found under 'tags' and 'recent posts').
Parkinson’s Patients Await Availability of Neupro In US (again)
I’ll Say It Again: Here’s Why PD and Haldol / Haloperidol DON’T MIX
My Journey With Dr. Anthony Santiago The Thing About Doctors Battling Parkinson’s Disease: It’s Okay to Cry